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Forum Home > General Discussion > Help raise awareness to EPI - please vote!!

Brynn's mom
Member
Posts: 65
JUST HOURS LEFT TO VOTE!! Please vote for Brynn so we can win the cover of Animal Wellness Magazine and raise awareness to EPI!! YOU CAN VOTE 3X PER DEVICE https://animalwellnessmagazine.com/photo-contest/?contest=photo-detail&photo_id=18929
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Maureen

August 7, 2017 at 4:01 PM Flag Quote & Reply

Riley's Mom
Administrator
Posts: 1964

Do you know how she is doing in the vote? I have voted!

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Elisabeth

Riley's Mom from Chesapeake, VA

Riley, 8 yr old Labradoodle diagnosed September 2014 cTLI 1.6

Weight before diagnosis 40 lbs, lowest weight 33 lbs, ready for the Chunky Monkey club as she weighed in at a whopping 42 pounds on 12/19/14!

Update: as of 2/25/15 Riley weighs in at 44.2 pounds!

Update: as of 6/15/15 Riley weighs in at 45 pounds!

Feeding grain free kibble TOTW, 1 tsp of Diane's 6x enzymes per cup of food. (I mix the enzymes in something moist). She is a picky eater--lately feeding her on a flat plate is the way to entice her to eat. 1 cup in the am, 2 cups in the pm, 1 tsp of coconut oil per meal, 1 packet of FortiFlora probiotic in the pm meal.

Began weekly B12 shots 10/23/14. Holding on shots for now.

Began 1 Wonderlabs B12 in the morning, 1 in the evening. Capsule opened up and sprinkled on her food.


*I am not a vet, anything I share or suggest on this site is solely from my experience as an EPI dog owner. It is recommended that anything shared or suggested on this forum be discussed with your pet's vet.*

August 8, 2017 at 8:03 AM Flag Quote & Reply

Epi4Dogs
Site Owner
Posts: 16992

How did Brynn do???????????

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Olesia, owned by Izzy, a 35lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable 9+ yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes (use EnzymeDiane's 6x) with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Fed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane., gave 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils.... until she developed Diabetes and now cannot tolerate higher fat foods.

In Feb 2013, Izzy developed a very serious condition called IMHA which she (thankfully) beat and is now in remission. We also discovered that now, at 8+ years old, she not only has EPI, but also Diabetes, Low Thyroid and High Cholesterol.  Izzy was able to receive excellent care because of the kindness of so many here on epi4dogs and  is currently  doing extra-ordinarily well. If anyone could spend a day with Izzy, they would never guess that she has any health problems!  Because of Izzy's concurrent conditions of Diabetes and High Cholesterol we had to make changes to our daily EPI routine. We had to alter the fiber, type of fiber and the fat content her diet. She is now on an all home-made diet which she does best on and has even been able to reduce the insuline (Vetsulin:pork-based insulin) . Because of the diet change to all home-made i no longer worry about hypoglycemia or hyperglycemia- -she is much more even-keeled with a diet of sweet potato, a lean meat/fish, sometimes a free range egg, cottage cheese,  fish oil+vitamins and bone meal. We tried Novolin N a human synthetic RNA insulin.... but Izzy did not do well on it. aside from all of Izzy's health issues.... she continues to wake up every day full of joy and a great sense of humor!

I am not a vet.  All of my suggestions/recommendations are based on personal expereinces, observations, information gleaned from EPI research, and information shared with me by EPI researchers....that hopefully may help others. Please always share anything and everything recommended on this forum with your vet.

August 8, 2017 at 10:56 AM Flag Quote & Reply

Brynn's mom
Member
Posts: 65
Elisabeth thanks so much for voting! I haven't heard yet...
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Maureen

August 9, 2017 at 11:18 AM Flag Quote & Reply

Brynn's mom
Member
Posts: 65
I would like to thank all of you who took the time to vote! It's now closed and I'm waiting to hear who won. And a special thank you to Olesia for helping me by posting here and on the EPI Facebook page!! I will let everyone know as soon as I find out!!
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Maureen

August 9, 2017 at 11:20 AM Flag Quote & Reply

Epi4Dogs
Site Owner
Posts: 16992

paws and fingers crossed!!!!!!! 

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Olesia, owned by Izzy, a 35lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable 9+ yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes (use EnzymeDiane's 6x) with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Fed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane., gave 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils.... until she developed Diabetes and now cannot tolerate higher fat foods.

In Feb 2013, Izzy developed a very serious condition called IMHA which she (thankfully) beat and is now in remission. We also discovered that now, at 8+ years old, she not only has EPI, but also Diabetes, Low Thyroid and High Cholesterol.  Izzy was able to receive excellent care because of the kindness of so many here on epi4dogs and  is currently  doing extra-ordinarily well. If anyone could spend a day with Izzy, they would never guess that she has any health problems!  Because of Izzy's concurrent conditions of Diabetes and High Cholesterol we had to make changes to our daily EPI routine. We had to alter the fiber, type of fiber and the fat content her diet. She is now on an all home-made diet which she does best on and has even been able to reduce the insuline (Vetsulin:pork-based insulin) . Because of the diet change to all home-made i no longer worry about hypoglycemia or hyperglycemia- -she is much more even-keeled with a diet of sweet potato, a lean meat/fish, sometimes a free range egg, cottage cheese,  fish oil+vitamins and bone meal. We tried Novolin N a human synthetic RNA insulin.... but Izzy did not do well on it. aside from all of Izzy's health issues.... she continues to wake up every day full of joy and a great sense of humor!

I am not a vet.  All of my suggestions/recommendations are based on personal expereinces, observations, information gleaned from EPI research, and information shared with me by EPI researchers....that hopefully may help others. Please always share anything and everything recommended on this forum with your vet.

August 9, 2017 at 11:43 AM Flag Quote & Reply

Jean and Kara
Administrator
Posts: 7356

we have voted on any and every occasion we can


jeanx

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Kara

 

From Liverpool England


born 21st July 2009


Adopted at five months old 26th December 2009

 

EPI dx August 2010


tli<1.00 folate 8.3 cobalimin 611

Antibiotics  2 Oxytet antibiotics 3 times a day also if we cannot fit the Oxytet in she has Tylan 1/8th teaspoon before her meals as a maintenanance dose

Food- Ashenbank Lamb Casserole  twice daily equalling 3 cups per day possibly more

Zantac (ranitadine) 75 mg 30 minutes before each meal as too much acid was being produced, causing shedding of bowel lining

Enzymes-Panzym 3 gram per meal twice daily ( 3/4 teaspoon ) 

B12 injection once every three weeks

One Chemeyes B12 with intrinsic factor of 40 daily

One Antepsin before bedtime

Allergies to beef, pork, chicken. and white fish confirmed by blood test

33.6 kilos in weight as of 5th May 2013

37 kilos as of 10th June 2014

40.65 kilos, 89.6 pounds as of 3rd March 2015

Vet says she is now processing her food correctly

Very proud of all of us

 

"UNCONDITIONAL LOVE WAS INVENTED BY DOGS"


I am not a vet, nor have veterinary experience, but have lived and breathed EPI for 51/2 years, and hope I can bring some support to others, as others have to me.

 

August 9, 2017 at 12:54 PM Flag Quote & Reply

Barb
Member
Posts: 3893

We voted a while ago.  Let us know how she did.


Barb

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August 10, 2017 at 7:55 AM Flag Quote & Reply

Brynn's mom
Member
Posts: 65
Jean and Barb...thank you both for the support! Apparently there were a few of us very close in votes (don't know how, with all you guys voting!). Anyways, they have contacted me asking for additional info like "any animal related initiatives that we have been involved in" and "info about her diet". We were involved in an Instagram project led by @legendarycanine to raise awareness to EPI where Nancy produced a limited edition shampoo bar formulated for Brynn. Some of the profits were donated to Olesia's foundation. In other words, we have a great story....how can we not win?!! I'll keep you posted
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Maureen

August 14, 2017 at 9:25 PM Flag Quote & Reply

Brynn's mom
Member
Posts: 65
WE WON!! Thanks everyone for voting! Apparently it was very close with a few of us so they asked additional questions. I truly believe Brynn having EPI (therefore a story to tell), in addition to her being somewhat instafamous (@brynn.infocus) led us to the win. We couldn't have done it without all your support!! Olesia, thank you so much again! One important point: she won't be featured till next year because they already have their lineup booked for the rest of this year
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Maureen

August 23, 2017 at 6:48 PM Flag Quote & Reply

Dar
Member
Posts: 3223

Maureen !!! So excited you and Brynn won !!!  Yippeeeeeeee !   Please let us know when Brynns story is published !!  Glad to have voted many ,many times for you !!

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  Dar and Kodi, From Washington state

 ' I aspire to be the person that my dog thinks I am !!'

Kodi (GSD female) , born August 19, 2010 , was diagnosed July 15, 2011 at 11 months .Lowest weight, 47 lbs, weight as of  4/27/2013  62.9 lbs. Our goal for her at this time is now 65 lbs. !!!   And she made it!! .  TLI .07 , Folate 9.4 , Cobalmin 536 .

Kodi is on Pioneer Naturals Whitefish or Venison , 2  cups kibble twice a day with  3/4 teaspoons of enzymes (X 8 ) per cup,from Diane. 1 Trinfac-B capsule once a day. Also 1/8 t. of ground coriander, 1/16 t. of ground fennel seed and cinnamon per meal (for stomach acid and burps). KOdi started having issues again with her feet.. I think it was the peas in the Acana foods..and her poo is good with the Pioneer Naturals too, she is not really happy about eating, but she is happier (or maybe I am to have solved the gnawing of the paws). So we will see how this works !



August 23, 2017 at 8:22 PM Flag Quote & Reply

Brynn's mom
Member
Posts: 65
Thanks so much Dar, for all the time you spent voting!!❤
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Maureen

August 23, 2017 at 9:11 PM Flag Quote & Reply

Doc's Mom
Administrator
Posts: 2938
Congrats !!! Thank you for helping spread awareness of EPI - extra love for Brynn for working so hard on being fabulous
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MADELON and DOC aka "BUBBY WUBBY"

Nashville, Tennessee

DOB: 4/3/2014 - Diagnosed EPI and SIBO: 5/22/2015
EPI Test Results: 1st test 7/2014 = TLI 16.5, B12 894, Folate > 24; 
2nd test 5/2015 = TLI < .4, B12 406; Folate >24; 3rd test 10/2015   TLI < .4; B12 >1000; Folate 14.4

Weight: 95 (highest 1/2015) - 76 (lowest 5/2015) - goal met 100lb (7/23/15) - 101.8LBS 12/3/15 - CHUNKY MONKEY

History prior to DX:  May/June 2014 (2mos old) - DX coccidia and bladder infection; July 2014 (3mos old) 1st EPI test = TLI 16.5, B12 894, Folate >24 - Diagnosed SIBO not EPI; Feb 2015 thru May 2015 - weight loss only; May  2015 vomitted several times, diarrhea and eating poop.

History since DX: has maintained weight between 95-101lbs since July 2015; extreme yeast and rod infection in ears; yeast infection paws (ongoing); bacterial eye infection; bacterial skin infection on legs; poops LIVE fly larvae; diagnosed with mild, focal superficial pyoderma (bacterial infection) - rare lesions on inner thighs; bacterial and yeast overgrowth lip folds; yeast overgrowth feet and left ear; metacarpal/metatarsal draining tracts/fistulae (infection and/or immune mediated disease; probable underlying allergy (food vs. environmental ); staphylococcus pseudintermedius infection in sores on paws; recurring metatarsal fistula - all issues resolved after NutriScan Food Sensitivity Test and switching foods.

NUTRISCAN Food Sensitivity Test (12/2015): reactive to chicken, turkey, white fish, wheat, white potato (mild), venison, soy (mild), pork (mild), duck (mild), corn - switching food based on test resolved all skin issues.

Serum Allergy Test (5/2016): Too many to mention

CURRENTLY :  6 cups Forza10 Legend Skin - Diane 6x 1tsp per cup; 1 WonderLab PetFactor B12 2x day; 2 scoops TotalBiotics 1x day; 600mg vitamin E; 1 Zyrtec 10mg 2x day; Milk Thistle during heartworm/flea/tick meds

I am not a vet.  All of my suggestions are based on my personal experiences, information gleaned from EPI research and information from other EPI owners.  Please always share anything and everything recommended on this forum with your vet

SO THANKfUL FOR OUR EPI4DOGS GUARDIAN ANGELS!!!!!!!!

YOUR PAWS LEFT PRINTS ON MY HEART (in loving memory of Bugsy aka Boo Boo - Boston Terrier 14yrs - not EPI but medically challenging and totally worth it)


August 23, 2017 at 9:46 PM Flag Quote & Reply

Jean and Kara
Administrator
Posts: 7356

How cool is this, and congrats, what a great way to educate


Jeanx

--



 

 

Kara

 

From Liverpool England


born 21st July 2009


Adopted at five months old 26th December 2009

 

EPI dx August 2010


tli<1.00 folate 8.3 cobalimin 611

Antibiotics  2 Oxytet antibiotics 3 times a day also if we cannot fit the Oxytet in she has Tylan 1/8th teaspoon before her meals as a maintenanance dose

Food- Ashenbank Lamb Casserole  twice daily equalling 3 cups per day possibly more

Zantac (ranitadine) 75 mg 30 minutes before each meal as too much acid was being produced, causing shedding of bowel lining

Enzymes-Panzym 3 gram per meal twice daily ( 3/4 teaspoon ) 

B12 injection once every three weeks

One Chemeyes B12 with intrinsic factor of 40 daily

One Antepsin before bedtime

Allergies to beef, pork, chicken. and white fish confirmed by blood test

33.6 kilos in weight as of 5th May 2013

37 kilos as of 10th June 2014

40.65 kilos, 89.6 pounds as of 3rd March 2015

Vet says she is now processing her food correctly

Very proud of all of us

 

"UNCONDITIONAL LOVE WAS INVENTED BY DOGS"


I am not a vet, nor have veterinary experience, but have lived and breathed EPI for 51/2 years, and hope I can bring some support to others, as others have to me.

 

August 24, 2017 at 4:52 AM Flag Quote & Reply

maddie ann
Member
Posts: 3543

Great news....well it will be when printed.

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 ANN (UK).

Maddie DOB 01-10-2007 she is now  10  DX 04/11 .B12 140 now 644 TLI <1.00 Folate 14.2.

After 15 months on the B12 tablets with the intrisic factor she was retested and her b12 was 902 which gave me the confidence to continue without injections.

Weight was 22.3kg now 33.2kg (04-05-12) she is a small GSDbut she gained .(24lbs)

Feed a mixture of foods she does better on fibre 3% and below she has  b12 tablets daily (imported from the USAhttp://www.wonderlabs.com/itemleft.php?itemnum=6881) now changing to the uk version from http://www.chemeyes.co.uk/

She has panzym altough over the years we have had to increase the dose she currently has 1/2 tsp per feed.


August 24, 2017 at 10:15 AM Flag Quote & Reply

Riley's Mom
Administrator
Posts: 1964

How exciting! Congrats, and thanks for promoting EPI awareness!

--

Elisabeth

Riley's Mom from Chesapeake, VA

Riley, 8 yr old Labradoodle diagnosed September 2014 cTLI 1.6

Weight before diagnosis 40 lbs, lowest weight 33 lbs, ready for the Chunky Monkey club as she weighed in at a whopping 42 pounds on 12/19/14!

Update: as of 2/25/15 Riley weighs in at 44.2 pounds!

Update: as of 6/15/15 Riley weighs in at 45 pounds!

Feeding grain free kibble TOTW, 1 tsp of Diane's 6x enzymes per cup of food. (I mix the enzymes in something moist). She is a picky eater--lately feeding her on a flat plate is the way to entice her to eat. 1 cup in the am, 2 cups in the pm, 1 tsp of coconut oil per meal, 1 packet of FortiFlora probiotic in the pm meal.

Began weekly B12 shots 10/23/14. Holding on shots for now.

Began 1 Wonderlabs B12 in the morning, 1 in the evening. Capsule opened up and sprinkled on her food.


*I am not a vet, anything I share or suggest on this site is solely from my experience as an EPI dog owner. It is recommended that anything shared or suggested on this forum be discussed with your pet's vet.*

August 24, 2017 at 9:34 PM Flag Quote & Reply

Brynn's mom
Member
Posts: 65

So sorry it took so long for me to reply. I literally just found out yesterday that Brynn will be featured in June/July issue of Animal Wellness Magazine. More good news....she will have a special code and anyone that orders a subscription using her code, they will donate 25% of those subscriptions to a rescue/charity/shelter of my choice. I choose EPI4dogs foundation!! I am so excited to spread awareness for EPI, and what better way than in Animal Wellness Magazine!! Thank you all again for helping me climb to the win!


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Maureen

November 14, 2017 at 6:28 PM Flag Quote & Reply

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