EPI * Exocrine Pancreatic Insufficiency
managing EPI
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| Forum Home > General Discussion > We are here at the convention === AVMA CONVENTION THREAD === | ||
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Member Posts: 277 |
O and I made it safely to St Louis- her way earlier than I and YES I was very jealous as I was continuing to drive another 5 hours and she called to say she was already at the hotel and going to find places to eat-lol. Olesia is wonderful. We just had a great walk and talked like old friends. Grabbed a bite to eat and are now back in our hotel room both on seperate computers -lol I think its the first time we have stopped talking since I arrived. Wish us luck tomorrow as it will be 97 and humid and we have to carry all this stuff to the convention center which is a short block away. We will get pictures up when we get it set up.
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-- Enzyme Diane, Diane Sloan, Concord Twp, OH, Pancreatin **17.64 oz Pancreatin 6x Digestive Enzymes $70-Compared to Viokase V ** Enzyme Supplement Orders: www.EnzymeDiane.com, Sarge DOB 11/31/00 GSD/EPI Dx'd 8/05 @ 71# TLI .3, Cobalamin 99, Folate 15.5. 2tsp Pancreatin 6x Supplement, 2 c 4 Health 2x per day, b12 injections,
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Site Owner Posts: 7645 |
Diane is just WONDERFUL- -so glad to finally met her! Right now we are kneeling on the floor getting all the materials ready for the set-up tomorrow.We are so excited (and nervous too) ... I promise to take pictures of things as we go along so that we can share with you. Later... olesia | |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils.
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Member Posts: 711 |
I hope you two can get some sleep...... You must be so very excited!!!! I know I'm so excited for you..... This is a tremendous weekend for EPI, and I could not think of two more perfect people to be there representing all of the EPI pet owners...... YOU GO GET 'EM GIRLS!!!!!!! | |
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-- Butterbean, 6 year old chihuahua, diagnosed in May-June'10 via pancreatic biopsy (in other words, it wasn't there). And now we have the TLI score of 0.7
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Member Posts: 4 |
Hi Girls !!!!!!!!!! Glad to here you made it safe and sound. I am excited for the both of you. A big woof from Jellybean. This is soooooooooooo great for the EPI cause. You ladies are our very special angels. Thanks for all you have done!!!!! | |
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-- Mother #2 of Butterbean, EPI Chihuahua. Mother #1 of Jellybean, non-EPI Chihuahua. Will have been on the EPI journey for one year in June 2011.
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Member Posts: 2160 |
Hi Olesia & Diane, I'm so pleased you have both arrived safely & have finally got to meet each other. You sound like just the best friends already. I feel there is a special bond that we all share that can never be broken. I will be thinking about you tomorrow. Hope all goes well (sure it will) & you both have a wonderful time. I thank you both from the bottom of my heart for doing this & I know everyone else here on the forum feels the same. I'm sure Miss Megg will be there with you, just keeping an eye on things. Can't wait for the photo's.
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-- Lynn, From Melbourne, Australia. Owned by Tess (Irish Setter), Grace (English Setter) & Megg, my beautiful 'English' EPI Angel - Forever in my heart. .
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Member Posts: 2190 |
Hello you two dont envy you the heat you describe at all you will have to ask Dr Tsai if she kows Alex German Karas vet fro, Liverpool Uni from what I see St Louis is a beautiful place so I hope you have some time to look around what are the hours you have to be there during the day? well good luck we are all rooting for you loads and loads of pictures Jean and a special woof from Kara | |
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-- Kara:: adopted at five months old 26th December 2009 always hungry more than any of my other dogs became noticeably distressed August 2010 Two vet visits and............. Diagnosed with EPI at 14 months old September 2010 tli<1.00 folate 8.3 cobalimin 611 taking 2 Oxytet antibiotics 3 times a day and eating Nutrix grain free duck and potato kibble and starting to put weight on currently 33 kilos as of 20th June 2011 we also use Tylan if we dont have the time to use the oxytet as it has to be on an empty tum, enzymes at the moment Pancrex granules 3 teaspoons per meal she is 2 yrs old as of 21st July 2011 "UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 2190 |
Just an add on
Gillian was told that Tylan is a very underused drug by the vet hospital and I have had Kara on this now for a month and she is doing better I just put it in a piece of chicken and she wolfs it And we are on Pancrex granules now so again over the last month changed one at a time Just for you to pass on and to upsell Tylan from the UK
jXXXX | |
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-- Kara:: adopted at five months old 26th December 2009 always hungry more than any of my other dogs became noticeably distressed August 2010 Two vet visits and............. Diagnosed with EPI at 14 months old September 2010 tli<1.00 folate 8.3 cobalimin 611 taking 2 Oxytet antibiotics 3 times a day and eating Nutrix grain free duck and potato kibble and starting to put weight on currently 33 kilos as of 20th June 2011 we also use Tylan if we dont have the time to use the oxytet as it has to be on an empty tum, enzymes at the moment Pancrex granules 3 teaspoons per meal she is 2 yrs old as of 21st July 2011 "UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 262 |
yea !! hope set up goes well and the heat doesn't get too much ! | |
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cindi ... Saint 9 yr retired lgd pyr, Pearl 5yr retired lgd akbash, Ko Ko 6yr pyr - best dog in the world, Mr. Wiggles 9yr mix w/ too much energy, Rosie 4 yr - life is good gentle gaint. The kitties of the house: Sammie 8yr,lil Miss Magic 4 yr , peaches ~ 3yr , Hannah 2 yr, Puff 1 yr and My little boy now wings.... Angel Brodie.
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Member Posts: 4186 |
Hi Diane and Olesia! Glad to hear you both made it safe and sound! I don’t envy you in the heat at all!!! Last week and most of this week have been nearly unbearable here with heat and humidity, but yesterday and today have been beautiful. Thankfully, you’ll both be in A/C most of the time. Take lots and lots of photos to share with us! I’ll be interested to hear how the veterinary community welcomes you. I’m with you in spirit! | |
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-- Donna
Owned by Tara, a 8 YO GSD w/EPI and DM dx'd at about a year old. Fed Taste of the Wild Lamb formular kibble and enhance this diet with cooked meat, veggies and fruit, Enzymes: Pancreatin 8x - 1 tsp per cup of food. Suppliments include 1000 mg Wild Salmon oil, Glucosomine/Chondrotin/MSM and Probiotic acidophilus. Stable since 2005 Also owned by sidekicks' Zoey my rescued GSD and Max, a 10 MO PWC rescue - along with Tess (GSD) and Zeke (PWC) with Angel wings
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Member Posts: 1843 |
Hi O and Diane, So glad you made it safe and sound. You sound like soul sisters already. We sure are glad you are there representing our pups and getting the information out there. You are the right two people to do this---generous and dedicated-- AND the kind of Intelligent the world needs, the kind with HEART. I had the wonderful privilege of meeting Diane over the phone this week--she took time to call me in the midst of packing for her trip to help me in my little dilemma about Kolby's enzymes. Talk about generous!! Thank you both for writing and keeping us all up to date. Can't wait to hear more and see pictures. Keep coooool. Hugs to both of you. Barb And a big sloppy kiss from Kolby | |
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Member Posts: 3926 |
Yeaaaaaa! Glad you both made it safe and sound. I am so psyched for you for today - you guys will do great - look how far you have come - that is no coincidence. I'll be wearing my shirt and supporting you the whole way! Have an absolutely amazing time...I know you will!!! Rock and roll girls...rock and roll!!! | |
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-- Michele "No matter how little money and how few possessions you own, having a dog makes you rich" - having 2 makes you even richer! :-)Jackie (back in pic) Diagnosed at 9 mos (09/09) - TLI 0.3 and low end of B12. Pancreatin 8x dosing 3/4tsp per cup. Natures Domain, Trinfac-B Intrinsic Factor daily, probiotics and Duralactin in the am. Stable and happy 115 lbs - thanks to all the beautiful souls on this forum, we could not have done it without YOU. Dexter - Diagnosed 11/10 approx 3 yrs of age. We failed fostering and now he has his forever home
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Member Posts: 884 |
And the Dynamic Duo are off!!!!! Have fun! Educate lots! | |
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-- Proud mommy to Vito, 3(?) yr old GSD. 90lbs, goal weight 85-90lbs (ACHIEVED!). Tested positive for EPI on March 30th, 2011. His TLI was 1.0, Cobalamin 225, Folate 22. Feeding 2 cups of Taste of the Wild Bison once a day with one teaspoon of Pancreatin 8x enzymes per meal. Also proud mommy of a (non EPI) Belgian Malinois tripod named Lizzie. That means three legs. "Sometimes it takes an imperfection to create perfection."
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Member Posts: 517 |
Hooray! How wonderful! We're all thinking about you! This is so fantastic for EPI Awareness! It's going to be a great weekend! Got my shirt on right now and pamphlets ready is anyone asks. | |
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-- Pamela and Rosina; 9 yr old LH Chihuahua Mix; dx'd 10/26/10; Currently 2.5 lbs overweight at 22.5 lbs. Free fed in AM and PM on 3/8 cup Wellness Core Chicken, Turkey Liver, and Chicken Liver Dry and 2 tbsp Wellness Core Chicken, Turkey Liver, and Chicken Liver canned, 1 tsp pumpkin (sometimes add 2 tbsp greenbeans when she needs more food because of increased appetite from the Temaril) and 1/2 tsp Diane's 8X granulated enzymes; 1 tbsp Wellness 95% Chicken or Turkey and 1/16 tsp 8X enzymes incubated and mixed with 1/16 tsp Tylan in the AM. Taking Temaril occasionally for allergies and Metacam 1X most days for leg pain.
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Member Posts: 277 |
The heat is awful! there is now AC in the convention hall on set up day they are making announcements to keep hydrated. Does this tell you how hot it is?! I confiscated a washcloth from the hotel its BADDDDDDDDDD. The booth is almost done we will post pictures as soon as we get done. Olesia will be posting the pictures as I can not do it on my computer
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-- Enzyme Diane, Diane Sloan, Concord Twp, OH, Pancreatin **17.64 oz Pancreatin 6x Digestive Enzymes $70-Compared to Viokase V ** Enzyme Supplement Orders: www.EnzymeDiane.com, Sarge DOB 11/31/00 GSD/EPI Dx'd 8/05 @ 71# TLI .3, Cobalamin 99, Folate 15.5. 2tsp Pancreatin 6x Supplement, 2 c 4 Health 2x per day, b12 injections,
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Member Posts: 884 |
Lightweights! It's 97 degrees down here too. XD I kid, I kid. Stay cool, drink lots of water. Wet bandannas around the back of the neck will help ALOT. | |
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-- Proud mommy to Vito, 3(?) yr old GSD. 90lbs, goal weight 85-90lbs (ACHIEVED!). Tested positive for EPI on March 30th, 2011. His TLI was 1.0, Cobalamin 225, Folate 22. Feeding 2 cups of Taste of the Wild Bison once a day with one teaspoon of Pancreatin 8x enzymes per meal. Also proud mommy of a (non EPI) Belgian Malinois tripod named Lizzie. That means three legs. "Sometimes it takes an imperfection to create perfection."
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Member Posts: 11 |
Go get them ladies!!!!! Sending good vibes to have an outstanding weekend. I'm sure the convention members will not forget you too soon...and I mean that in that in a good way...though attending in a bathing suit with the heat but help too (Hee hee). | |
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Member Posts: 727 |
Have fun ladies, looking forward to the pics. Send some of the heat to Scotland and I'll send you the rain. xox | |
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-- Wallace rescue GSD. Currently feeding James Wellbeloved Turkey and Vegetable Cereal Free and some Butcher's Tripe. Four teaspoons Pancrex Granules and 2 Lypex capsules per meal. (Will go back to raw pig pancreas soon.) Three meals a day 3 times per week, 2 meals a day the other 4 days otherwise he stops eating. Tylan 1/8 teaspoon twice a day (this is half the recommended dose for his weight but the recommended dose made his poos soft!) Synbiotic D-C (probiotic and prebiotic) capsule once a day. Monthly B12 injection.
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Member Posts: 2190 |
http://blogs.riverfronttimes.com/dailyrft/2011/07/weather_report_heat-related_il.php
please be careful
jean | |
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-- Kara:: adopted at five months old 26th December 2009 always hungry more than any of my other dogs became noticeably distressed August 2010 Two vet visits and............. Diagnosed with EPI at 14 months old September 2010 tli<1.00 folate 8.3 cobalimin 611 taking 2 Oxytet antibiotics 3 times a day and eating Nutrix grain free duck and potato kibble and starting to put weight on currently 33 kilos as of 20th June 2011 we also use Tylan if we dont have the time to use the oxytet as it has to be on an empty tum, enzymes at the moment Pancrex granules 3 teaspoons per meal she is 2 yrs old as of 21st July 2011 "UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 649 |
You ladies rock !!! I can't wait to experience this through you ..... Have fun and enjoy your time there !!! Dar and Kodi | |
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Member Posts: 1843 |
The booth looks great! Can't wait to hear how it goes tomorrow! We know you will be perfect. We have had that heat here and it finally broke yesterday. Starting Sunday, we are getting it back even worse.....must be the stuff in St. Louis coming our way. Try to stay cool. (We know you ARE cool!) Barb | |
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At initial testing - TLI 1.2 (range 5-35) B12 254 (range 249-733) folate 20.2 (range 6.5-11.5) Natures Domain, Pancreatin 8x dosing is 1tsp per cup, Trinfac-B Intrinsic Factor daily, probiotics with each meal and glucosamine chondroitin in the am. Stable and happy 95 lbs 8/15/11
Who is completely spoiled rotten, loves kids, and will be going into therapy dog training as soon as I can afford it.You must login to post.
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