EPI * Exocrine Pancreatic Insufficiency
managing EPI
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Member Posts: 904 |
Hi dear friends, I am here to request prayers for a dear friend of mine. This story will shock you, and probably bring you to tears, as it has me. My friend Dolores has a sweet 11 yr old Grand Daughter named Lisa Marie. Her mother (a single mom) was forced to leave her job and give up her apartment and is now living in a Ronald McDonald house next to the hospital. Lisa Marie has been in three different hospitals in attempts to help her. There is no response or anything from her, but she has been taken off life support and has survived. She is on a feeding tube to keep her alive. Now they are told that there is nothing more that can be done for her and they must "bring her home." However, there is no home to bring her to. My friend Dolores (64 yr old retired woman) is planning to move in with her daughter(somewhere) to help with the care of Lisa Marie, for what will likely be FOREVER. I know that this picture looks hopeless, but there is no greater group to bring on a miracle. I have seen it done over and over here because of the wonderful hearts and spirits of the EPI4dogs people. After all, most of us have our wonderful pets by the power and will sent out from the this dynamic group. Please take a minute of your day and send a prayer out for sweet Lisa Marie and her mom and Grandmother. They are about at the end of their rope now, and need a miracle to save them. Thank you, | |
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-- Brenda & Sailin Suzie. Worlds Greatest Boat Dog
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Site Owner Posts: 7645 |
Oh Brenda... this is so so sad! I will gladly say prayers for this young lady and am sure others on the FORUM will take a moment and say a prayer for her too....no child should have to go through something like this......Prayers and well wishes being sent LIsa Marie's way and to her family. | |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils.
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Member Posts: 1560 |
If prayers can help sweetheart... you have them for this sad and courageous family. I have grandkids too and one in the RAF due to go to Afganistan next year.... so I can feel for your friend... our grandkids are so valued and prescious. white light and all the power we can muster is on the way. Val | |
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Member Posts: 3926 |
Oh Brenda - what a tragic situation. My love and light goes out to Lisa Marie and her mom and grandmom. In situations like this I feel so helpless, but know I will print her picture and keep her in my Reiki box and send her love and light often...God Bless. | |
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-- Michele "No matter how little money and how few possessions you own, having a dog makes you rich" - having 2 makes you even richer! :-)Jackie (back in pic) Diagnosed at 9 mos (09/09) - TLI 0.3 and low end of B12. Pancreatin 8x dosing 3/4tsp per cup. Natures Domain, Trinfac-B Intrinsic Factor daily, probiotics and Duralactin in the am. Stable and happy 115 lbs - thanks to all the beautiful souls on this forum, we could not have done it without YOU. Dexter - Diagnosed 11/10 approx 3 yrs of age. We failed fostering and now he has his forever home
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Member Posts: 517 |
Oh Brenda, What a heartbreaking story. I will definitely be praying for Lisa Marie and her entire family. Miracles do happen every day. | |
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-- Pamela and Rosina; 9 yr old LH Chihuahua Mix; dx'd 10/26/10; Currently 2.5 lbs overweight at 22.5 lbs. Free fed in AM and PM on 3/8 cup Wellness Core Chicken, Turkey Liver, and Chicken Liver Dry and 2 tbsp Wellness Core Chicken, Turkey Liver, and Chicken Liver canned, 1 tsp pumpkin (sometimes add 2 tbsp greenbeans when she needs more food because of increased appetite from the Temaril) and 1/2 tsp Diane's 8X granulated enzymes; 1 tbsp Wellness 95% Chicken or Turkey and 1/16 tsp 8X enzymes incubated and mixed with 1/16 tsp Tylan in the AM. Taking Temaril occasionally for allergies and Metacam 1X most days for leg pain.
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Member Posts: 2160 |
Brenda, you certainly have my prayers for this beautiful young girl & her family. What a tragic story. Oh my goodness. I agree with Pamela; miracles do happen. Love & hugs from us in Oz. | |
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-- Lynn, From Melbourne, Australia. Owned by Tess (Irish Setter), Grace (English Setter) & Megg, my beautiful 'English' EPI Angel - Forever in my heart. .
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Member Posts: 904 |
Thank you all so much for your kind words and for your prayers. Tonight is a very Magickal night, 11-11-11, and you can bet that at 11:11 I will be out on the dock with my candles and cauldron to cast a spell for Lisa Marie and her family. If any of you are awake at this time, please send your prayers and energies. I am in the USA Pacific time zone. Actually, that will be just a little over an hour from now, so if you can send energies then, it would really help. Thank you so very much, | |
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Member Posts: 649 |
Prayers and ((((HUGS)))) to Lisa Marie and her family......Energies and prayers coming your way Brenda..... @ 11:11pm ........ | |
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-- Dar and Kodi Kodi (GSD female , born August 19, 2010 , was diagnosed July 15, 2011 at 11 months .Lowest weight, 47 lbs, weight as of 2/ 20/ 2012 59.6 lbs. Our goal for her at this time is 60lbs. ... We made it !!! 60.4 lbs on March 31, 2012 . TLI .07 , Folate 9.4 , Cobalmin 536 .Kodi eats TOTW Sierra Mountain (Lamb and sweet potato, grain free), 2 cups,2 times a day with 1 teaspoon of pancreatin 8x per cup., recently added small lunch(1 cup plus 1 teas. enzymes) enzymes ( From Diane...awesome lady!!!) , with warm water and letting it sit for 30 minutes . She is our furry kid whom just loves playing with the grandkids !!!!
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Member Posts: 2190 |
Hi Brenda
Geeezzzzzzzzzzzzzzzzzzzzzzz
the law here is very strict on cell phone use in cars and an accident like that would have been all over the news
I have sent you a private e-mail
Jeanxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx | |
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-- Kara:: adopted at five months old 26th December 2009 always hungry more than any of my other dogs became noticeably distressed August 2010 Two vet visits and............. Diagnosed with EPI at 14 months old September 2010 tli<1.00 folate 8.3 cobalimin 611 taking 2 Oxytet antibiotics 3 times a day and eating Nutrix grain free duck and potato kibble and starting to put weight on currently 33 kilos as of 20th June 2011 we also use Tylan if we dont have the time to use the oxytet as it has to be on an empty tum, enzymes at the moment Pancrex granules 3 teaspoons per meal she is 2 yrs old as of 21st July 2011 "UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 904 |
Thanks again everyone. Jean, yes, there are laws here about cell phone use too. But, as you know, not every one follows them. Texting has gotten out of control in this country. Obviously she as LOOKING at her phone and didnt see the car stopped in front of her. Texting is ruining relationships in my opinion. I cant believe how many people will stop you from talking to them in order to text, right in the middle of a conversation. AND, they dont see this as rude!!!! I always thought "interrupting" someone was RUDE. Not in this high tech age of ours. I sit at swimming lessons for my Grandsons twice a week with parents. Last class, 4 out of 6 parents were looking at their phones the entire time, instead of watching their cute little kids, as they looked over to Mom and Dad for approval. OK, I am getting off this soapbox now. Thank all of you again, | |
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-- Brenda & Sailin Suzie. Worlds Greatest Boat Dog
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Member Posts: 44 |
What an angry history. I mean angry cause being like this isn´t her fault adding she is almost a teenager. Muy prayers for becoming better. | |
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Member Posts: 2473 |
What a heartbreaking story. I will certainly keep all in my prayers. | |
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-- Kathy and Ted 9 yr old GSD rescue ~72 lbs now 109 lbs
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Member Posts: 992 |
What a difficult path to have to travel! I cared for many children with very similar injuries when I worked in neurosurg at Sick Kids, so I think I can picture Lisa Marie and her family very well. Children's brains are very resilient and I've seen miracles happen. I will pray for them all Brenda and also that a benefactor will come to them to help with the necessities they will need to hold space and time for Lisa Marie to heal, if that is her choice to make. Love and light, | |
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- Barb -
Mom to Cedar, diagnosed with EPI Nov 1, 2010, TLI 1.2, April 2011 B12 310 (150-700), Folate 31 (7-39); Dec 2011 B12 349 (150-700), Folate 18 (7-39); now on B12 injections weekly; 1 3/4 tsp pancreatin 8X/meal, 1 1/4 c Evo Red Meat Grain free + 1/2 c add ins (pork, salmon, sardines, haddock, egg, pumpkin are the usual), 1/3 c water, incubated x 30 minutes; 2 meals/day; current weight 69.9 lbs. Also has Pannus; treated with tacrolimus ointment 2 x daily each eye and gets 100 ug Vit E daily for immature cataracts. Also Mom to pupkids Bree and Griffin, and catkids Abby, Diamond and Max...and skinkid Ayden
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Member Posts: 884 |
Sending all my best thoughts their way, and wishing they make it through this. | |
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-- Proud mommy to Vito, 3(?) yr old GSD. 90lbs, goal weight 85-90lbs (ACHIEVED!). Tested positive for EPI on March 30th, 2011. His TLI was 1.0, Cobalamin 225, Folate 22. Feeding 2 cups of Taste of the Wild Bison once a day with one teaspoon of Pancreatin 8x enzymes per meal. Also proud mommy of a (non EPI) Belgian Malinois tripod named Lizzie. That means three legs. "Sometimes it takes an imperfection to create perfection."
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Member Posts: 2548 |
Prayers for Lisa Marie and her family for a miracle | |
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-- ~Becky~
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Member Posts: 904 |
Good Morning EPI friends, Thank you once again for all your prayers and energies for Lisa Marie. I am becoming more concerned. I have not heard from Dolores, the Grandmother since I posted this thread. I am hoping that is because of positive events, and not negitive ones. I will try once again to reach her today and update you all when I hear anything. Thank you again, and please keep it up. Love ya all, | |
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-- Brenda & Sailin Suzie. Worlds Greatest Boat Dog
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Site Owner Posts: 7645 |
prayers still being said for Lisa Marie........ | |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils.
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Member Posts: 330 |
Holding out hope here....as Barb said, children are very resilient and miracles do happen. Keep us posted Brenda. Lisa | |
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Member Posts: 904 |
Morning everyone, I have some good news about Lisa Marie. Her mother was attempting to brush her teeth, and asked her to open her mouth, AND SHE DID!!!!!!! I feel this is a wonderful event. Dolores tells me that she still just stares into space and doesnt make eye contact, but this is a good break through, in my opinion. The doctors have told her that they dont expect much awakening from her until between 3 and 6 months, so I am hopeful and the family is too. Thanks again for everything you are all doing for this sweet little girl and her family. PLEASE KEEP IT UP!!!!! Magic is alive and we are a powerful group. I love all of you, | |
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-- Brenda & Sailin Suzie. Worlds Greatest Boat Dog
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Member Posts: 283 |
Prayed for her complete recovery. Thank God everyday for her healing and look for her recovery ... | |
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-- Ruby doo bee lol was diagnosed with EPI in June 2011. Lost 20 lbs before told about the TLI from the vet. Was diagnosed with EPI test result was 2.0. No other tests given. Gained back 6 lbs. Finally, *8/11 had B12/Folate test taken ..(Vet delayed it) B12 is 216. Shots will start Monday. Not on shots anymore instead we use Wonderland B12 with intrinsic factor twice a day with each meal. Her B12 was tested and she is in a very safe range high. Gained weight, she now 53 lbs. Was on powder enzyems 1 tsp per 1 cup of food. Did well. I was allergic to powder and she started to not eat and bleed from the mounth and had other problems showing up. Switched to tablets (didn't work). Now on Creon Capsule 1capsule 24,000 units per 2 cups of food. Feeding 4 cups per day. Natural Blance Venison and Sweet Potato plus a little lean boiled chopmeat. Also started her and trying probiotics 1/18 of a teaspoon every other day. Seems to be working fine.
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In August she was walking home from school and was hit by a car, inside the cross walk. The woman was texting on her cell phone (let this be a message to all of us). Lisa Marie actually broke the windshield with her face, and was then thrown 20 ft. to crack her head open on the curb. She has been in the hospital ever since with sever brain damage. I know, what you are all thinking as you read this, because I was in shock also.
At initial testing - TLI 1.2 (range 5-35) B12 254 (range 249-733) folate 20.2 (range 6.5-11.5) Natures Domain, Pancreatin 8x dosing is 1tsp per cup, Trinfac-B Intrinsic Factor daily, probiotics with each meal and glucosamine chondroitin in the am. Stable and happy 95 lbs 8/15/11
Who is completely spoiled rotten, loves kids, and will be going into therapy dog training as soon as I can afford it.You must login to post.
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