EPI * Exocrine Pancreatic Insufficiency
managing EPI
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Member Posts: 359 |
Hello ALL, I just went through the whole membership looking to see what countries the membership is from. Basically we have members in about 31 countries. There are quite a few where we have no clue. It would be great if everyone updated their profile. And in your profile could you let us know what city and state or city and country you live. Please don't put your address, just general info to be safe. I don't know if we can tie Google map to this site, but it would be interesting to see where everyone lives. To update your profile, you need to log in to the epi4dogs.com web site. Then click on Edit Profile. Then select the EDIT ACCOUNT TAB Go to the Location box and enter your City, State or Country. Then click on Submit. Frank Dajnowicz | |
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Member Posts: 919 |
Thanks Frank. It's a great idea as people in the same area might want to get together or share resources, vets, etc. Also since people will be updating their profile with the location info it's a great time to either update or fill in the info about your pup in your signature, so that we either don't have to go back to the profile to find info or read through old posts looking for info. The info that is helpful in a signature is: breed, date or year of birth (easier way to figure age and you don't have to keep updating how old the pup is), age or date of dx, current weight, goal weight (and/or weight at diagnosis), type and amount of food per meal and # of meals a day, type and amount of enzyme, whether getting B12 and which way (shots, pills or sublingual) and frequency, whether on antibiotics and which one and for how long and really helpful to have the original test scores for cTLI, B12 (cobalamin) and folate (which can indicate SIBO). I know I need to update weights on my pups in the profile and amount of enzyme....need to check and see if I ever put location in. Thanks again Frank! | |
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-- Terry Mom of two EPI Shiloh Shepherds: Pharaoh born Nov. 2007 (dx December 2009) and his older half sister,Taiko born Sept. 2006 (dx June 2010). Pharaoh was 62.4 lbs. when diagnosed in 12/2009 and 10/31/11 his weight was 76.6 and 82.5 lbs on 1/28/12. Received six weeks of B12 shots Jan-Feb 2010 but his B12 on 8/10/2010 was only 232. Taiko's weight was 70.7 lbs. in June 2010 (time of diagnosis) and on 10/31/11 was 80.4 and on 1/28/12 was 84 (2 lbs. over vet's max weight for her). B12 was 211 in June 2010 and 293 on 8/10/10 (after getting weekly shots). Both pups receive B12 shots weekly at home. Both are fed twice a day Costco grain free brand: 2 cups kibble in the morning with 4 crushed tblets and 2 1/2 cups evening with 4 1/2 crushed tablets; plus each meal also get cooked ground turkey (app 1/4 lb. each meal) or half a can of dog food.
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Member Posts: 578 |
Good idea it threw me the other week when i saw Babylon !!!! on Buddys tab i was thinking of hanging gardens and then realsied it was just USA, Ann | |
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-- Maddie orginal Diagnosed 12/04/11 her TLi was 1 Folate14.2 DOB 01/10/2007 B12 140/165/235 now 644 was on jabs until 28/01/2012 now on B12 intrinsic factor tablets daily with food. Weight was 22.3 Currently 27.1 (13-09-2011)28.8(27-10-11)31.7(02-12-11)32.5(27-01-2012) up 10kgs and Down to 31.7 (not feeding the correct amount 28-02-2012) need to get back to 32.5 this was her weight before DX.Hooray.............33.2 (04-05-12) Feeding grain free- Burns/Fish4dogs/Simpsons/Changed foods more digestible now on 400 grams per feed Panzxym 1.5 ml teaspoon per feed(used to use 2 lypex per feed) She had SIBO but this has not flared up since last august she was on Oxytet this didnt work so put on:stomorgyl- Treated with Synbotic capsules as well (pre-probotics )
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Member Posts: 787 |
Ann, that's so funny. I had the exact same reaction to "Babylon". | |
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-- Paula and Maya (bday 12/21/06) (diagnosed 10/26/10 TLi 1.5, B12 659 (ref:249-733), weight 52 lbs. After 30 days, retested B12/folate - B12 plummeted to 200, which greatly affected her personality. After following B12 protocol, currently giving weekly B12 shots at home. Weight on 4/24/12: 72 lbs - the picture of health.
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Site Owner Posts: 7645 |
Excellent idea Frank.....the city, state and country would help a lot !!!!!!!!!!!!!...... I just added "USA" to mine. Terry, great mention to update our profiles too!
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils.
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Administrator Posts: 1945 |
I had a play with a Google widget when doing the last makeover, a generic country visitor map, I'll see if I can dog it out later today. Hey Frank, where you from? | |
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Craig Lulu (aka Miss Lulupants) is a 4 year old 'Red Shepherd' (Australian Red Heeler x Long-hair GSD) who lives in Adelaide, South Australia. Diagnosed with EPI in April 2010. Currently on one Creon 25k per meal;
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Member Posts: 359 |
Craig, Canton, Michigan, USA Frank | |
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Administrator Posts: 1945 |
Excellent, I'll see if the site stats can pinpoint you on the map...can't remember if I finished it or not back when... | |
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Craig Lulu (aka Miss Lulupants) is a 4 year old 'Red Shepherd' (Australian Red Heeler x Long-hair GSD) who lives in Adelaide, South Australia. Diagnosed with EPI in April 2010. Currently on one Creon 25k per meal;
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Site Owner Posts: 7645 |
Frank thank you SO much for posting those visual instructions....i am SOOOooooo technically challenged, i thought, no biggie, i'll just edit my profile and change it... so i go to my profile and then didn't have a clue where to update my address and add USA,,,,, i had to come back to this thread and READ your isntructions!!!! Thank You! | |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils.
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Member Posts: 359 |
Hi O, It's easy with this PrintKey-Pro program I have (costs about $20), from www.warecentral.com. Once you install it that key that says "Print Screen SysRq" now functions. What ever is on your sceen and you press that key is captured and you can select whatever on that screen and it saves it as a jpeg file. Simple as pie to use. Frank | |
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Administrator Posts: 1945 |
...well after fiddling with fiddly code (grrrr) for longer than I care to admit I've managed to get a little visitor map working so we can see the reach of epi4dogs.com - huzzars! I've popped a little map in the sidebar and Olesia, there's a bigger one here showing the most recent 100 visitors which automagically updates. You might like it in a particular section, just let me know, it's here for the moment though... http://www.epi4dogs.com/visitors.htm There's nothhing like global awareness now is there | |
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Craig Lulu (aka Miss Lulupants) is a 4 year old 'Red Shepherd' (Australian Red Heeler x Long-hair GSD) who lives in Adelaide, South Australia. Diagnosed with EPI in April 2010. Currently on one Creon 25k per meal;
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Site Owner Posts: 7645 |
you guys are WAY TOO COOL!!! and thank heavens cuz i am so not technical. Frank... a mere $20 eh? I am going to have to look into that! Craig... aha! So you are the one who magically made that map appear... i just got on and noticed it and was VERY impressed but had no idea how it got there....thank you SO much..... i just checked out the big map......COOL!!!!! How aboout if i make another tab in the tool bar... can you load the map there? I'll name it "Visitors"........ will this work? | |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils.
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Member Posts: 359 |
Craig, Great job! Code and me are like oil and water, we don't mix. you can literally see where people are awake and visiting. Lots of people in Michigan where I don't recognize. The majority are probably visitor who have not registered. O, Go to the web site & get it for free for 30 days Frank | |
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Administrator Posts: 1945 |
Well it was a bit like getting oil to act like water getting it to work but I somehow managed to pour the right liquid in the right glass. A way back I had a look to see if we could do something similar with actual member locales from the info submitted in the member profiles, which is what you were thiinking Frank, but unfortunately I've no way of extracting it from the forum in a useful format. I worked out how to extract it recently as text but frankly it's a (non-EPI) dog's breakfast. The only way to do it is manually like Olesia did at the convention - with a big map with pins in it! We could list all the countries where members hail from the survey you did if you wrote them down. Just send me an email... Olesia, done! and made it bigger still. I'll jazz it up a bit more over the weekend if I get a chance, there are a couple of other do-dads that shouldn't require as much keyboard time that might be fun to see if I can get them working and nice 'n purdy. Wow, it looks like the US has been busy but look at Becky up there all on her lonesome | |
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Craig Lulu (aka Miss Lulupants) is a 4 year old 'Red Shepherd' (Australian Red Heeler x Long-hair GSD) who lives in Adelaide, South Australia. Diagnosed with EPI in April 2010. Currently on one Creon 25k per meal;
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Member Posts: 578 |
Wow. I came on the forum about 10 am uk time and it showed couple of Uk hits and then USA India and Australia now 2 hours later we have had hits from Italy Slovak ireland and Finland. Um should get on with some work really !!! Ann
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-- Maddie orginal Diagnosed 12/04/11 her TLi was 1 Folate14.2 DOB 01/10/2007 B12 140/165/235 now 644 was on jabs until 28/01/2012 now on B12 intrinsic factor tablets daily with food. Weight was 22.3 Currently 27.1 (13-09-2011)28.8(27-10-11)31.7(02-12-11)32.5(27-01-2012) up 10kgs and Down to 31.7 (not feeding the correct amount 28-02-2012) need to get back to 32.5 this was her weight before DX.Hooray.............33.2 (04-05-12) Feeding grain free- Burns/Fish4dogs/Simpsons/Changed foods more digestible now on 400 grams per feed Panzxym 1.5 ml teaspoon per feed(used to use 2 lypex per feed) She had SIBO but this has not flared up since last august she was on Oxytet this didnt work so put on:stomorgyl- Treated with Synbotic capsules as well (pre-probotics )
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Member Posts: 2548 |
Hello Craig - Cool map! Curious.... is this compiled by IP addresses of anyone who views the website? Last night I was showing all by lonesome up here... this morning it shows I have company... but I logged on using a different computer..... | |
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-- ~Becky~
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Administrator Posts: 1945 |
Yeah, maps are cool. IP addresses can be a little slippery but give a good general indication. Most folk are assigned dynamic IPs by their internet providers and so will change from time to time. If you have a session in the evening, disconnect then reconnect in the morning you could get a new IP address. If those two sessions are within the last 100 you'll show up twice. At the moment I see 3 visits from Alaska so it could indeed be time to make some new AK friends | |
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Craig Lulu (aka Miss Lulupants) is a 4 year old 'Red Shepherd' (Australian Red Heeler x Long-hair GSD) who lives in Adelaide, South Australia. Diagnosed with EPI in April 2010. Currently on one Creon 25k per meal;
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Administrator Posts: 1945 |
...although none of that explains what this person is doing floating in the ocean on the equator off the Ivory Coast...
'Somebody' is in trouble | |
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Craig Lulu (aka Miss Lulupants) is a 4 year old 'Red Shepherd' (Australian Red Heeler x Long-hair GSD) who lives in Adelaide, South Australia. Diagnosed with EPI in April 2010. Currently on one Creon 25k per meal;
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Member Posts: 2190 |
well all i hope is that another ship hasnt gone down
frank you are on a roll!!!!!!!!!!!!!!!!!!
jxxx | |
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-- Kara:: adopted at five months old 26th December 2009 always hungry more than any of my other dogs became noticeably distressed August 2010 Two vet visits and............. Diagnosed with EPI at 14 months old September 2010 tli<1.00 folate 8.3 cobalimin 611 taking 2 Oxytet antibiotics 3 times a day and eating Nutrix grain free duck and potato kibble and starting to put weight on currently 33 kilos as of 20th June 2011 we also use Tylan if we dont have the time to use the oxytet as it has to be on an empty tum, enzymes at the moment Pancrex granules 3 teaspoons per meal she is 2 yrs old as of 21st July 2011 "UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 359 |
Craig, First of all you are doing a fantastic job with this map stuff. With almost 800 members this map could get pretty cluttered, so the last 100 would make the most sense. Did you use Print-Key Pro for your insert? If so, what do you think of it? I would venture that somebody is in the Navy, on an merchant ship, a yacht or it could be "Brenda & Sailin Suzie" out of California USA, she lives on a sailboat. Here is a list of the countries I found before the request to update your profile. Australia, Baleeze, Belgium, Brazil, Canada, China, Czech Republic, England, Finland, France, Germany, India, Ireland, Isle of Man, Israel, Italy, Jakarta, Malaysia, Mexico, N. Ireland, New Zealand, Norway, Oban, Puerto Rico, Scotland, Spain, Sweden, Tasmania, Thailand, USA, Wales Frank | |
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