EPI * Exocrine Pancreatic Insufficiency
managing EPI
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Member Posts: 26 |
Hello Everyone! I apologize but it has been awhile since I have been here. Gigi has been doing well! We are closing in on two years since diagnosis. While I do come here to read the postings I haven’t had a need to post and I consider that a win! Recently, there have been two times where this snot looking substance has come out of her rectum. The first time, last Sunday, it just looked like snot only that came out. This morning it was a lot snot with some poop. I found this during my search “Mucus indicates a possible imbalance in the colon, or possible lining shedding” but couldn’t find anymore information. I guess my question is this….is it serious? Is there anyway to tell if it is an imbalance or lining shedding? They both sound like serious conditions to me. This is a very recent thing. Gigi has been doing well on the enzymes (God bless you Enzyme Diane) and I am giving her monthly B-12 shots. Gigi bounces around like a normal dog and is keeping her weight steady at 22 pounds (after getting down to a very scary 12 pounds two years ago this month)! Thank you for any insight. Kendra
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Member Posts: 2062 | Looks like you've stumped everyone so far, Kendra. Jean's dog Kara shed her intestinal lining recently and it was much more than just some mucus. It was bloody and ugly, so I'd guess that its something else. Sometimes people see mucus come out when their dog starts on antibiotics... Theory is its the bad stuff leaving the body. If it were my dog I'd do what you are, keep a close eye and hope it goes away. If not, to the vet with the sampler at least a photo. Good luck. Hopefully someone will have direct experience for you. | |
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-- Paula and Maya (bday 12/21/06) (diagnosed 10/26/10 TLi 1.5, B12 659 (ref:249-733), weight 52 lbs. After 30 days, retested B12/folate - B12 plummeted to 200, which greatly affected her personality. After following B12 protocol, currently giving weekly B12 shots at home. Weight in July 2012: 75 lbs - the picture of health.
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Site Owner Posts: 10230 |
Hi Kendra... my rule of thumb with mucus and the EPI dog has always been if it happens just once... then don't worry about it., it was probably lining shedding..or just an anomaly..... if it happens every couple of days or so... then it's SIBO brewing..............HOWEVER.... then Jean's dog Kara had a real bad bout of lining sheding it ... like Paula said... was Nasty....REAL NASTY .....and i think it happened twice in one week... so that kind of throws my personal rule of thumb out the window,,,, so... just watch closely AND listen for any tummy gurgling, rumbling noises and of course, if you smell stinky gas then it is SIBO and treat with a course of anti's ( Tylan preferred). Hey... a HUGE congrats that you haven't had the need to post on the forum for so long!!!! Means you've been taking great care of Gigi!!!! | |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils. In Feb 2013, Izzy developed a very serious condition called IMHA which she (thankfully) beat and is now in remission. We also discovered that now, at 8 years old, she not only has EPI, but also Diabetes and Low Thyroid. Izzy was able to receive excellent care because of the kindness of so many here on epi4dogs and is currently doing extra-ordinarily well. If anyone could spend a day with Izzy, they would never guess that she has any health problems!
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Member Posts: 26 |
Thank you for the responses. Unfortunately things have taken a turn for the worse I am afraid. I took Gigi to the vet with what I presumed as an eye infection and we are now looking at a possible lymphosarcoma diagnosis. All of her lymph nodes are swollen. So the vet recommended a biopsy on her one lymph node that was really swollen and now we are just waiting to hear. I had her back to the vet yesterday as she has now developed a blood clot under the incision site. Oh boy...it has been a very rough couple of days on me and her. Her belly is also full of fluid. I am not sure if she is retaining water due to the steroid she is on for her unveitis or not. I am scared out of my wits. It will be 2 years in January she was diagnosed with EPI and I fought so hard to get her well and now look.....Cancer may take her way too soon anyway. I couldn't have gotten as far as I did without the wonderful advice of this forum though. You guys are such a wonderful support system. Everyone keeps telling me at least I gave her two really great years of health and love but...I am going to be selfish and say that it isn't enough for me but that doesn't mean if the worse comes about I won't do right by her she has suffered way more than any dog should. Wish me luck! Happy Howlidays to everyone on here too!
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Member Posts: 3815 |
Oh my darling this is crap
my girl did have shedding of the bowel and it was brought under control but this is beyond me
let us know
my thoughts are with you
can I just say that there is always hope
PLEASE PLEASE let us know
jeanx | |
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-- Kara From Liverpool England adopted at five months old 26th December 2009 EPI dx August 2010 tli<1.00 folate 8.3 cobalimin 611 Antibiotics 2 Oxytet antibiotics 3 times a day also if we cannot fit the Oxytet in she has Tylan 1/8th teaspoon before her meals Food- Ashenbank Lamb Casserole twice daily equalling 3 cups per day possibly more Zantac (ranitadine) 75 mg 30 minutes before each meal as too much acid was being produced enzymes-Panzym 1 gram per meal twice daily ( 1/4 teaspoon ) plus one Lypex B12 injection once every three weeks one Chemeyes B12 with intrinsic factor of 40 daily one Antepsin before bedtime alergies to beef pork chicken and white fish confirmed by blood test 33.6 kilos in weight as of 5th May 2013
"UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 911 |
So sorry to hear about Gigi, you're right it doesn't seem fair when our EPI pups have to suffer something else after fighting so hard to get healthy. Good luck to you and your family. | |
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-- Tracey and Sofie Sofie, Shiloh shepherd, born March 2010; diagnosed April 2011. Currently eats 5 cups of Taste of the Wild Sierra Mountain (has no chicken in it) per day plus a bit of cooked beef, pork, tripe or liver, etc. with 1 tsp. of 8x enzymes per cup. 2 Trinfac-B Intrinsic Factor per day. 1/4 tsp. Tylan 2x per day with meals - every time I try to stop the SIBO comes back. Looking at probiotics..
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Member Posts: 3815 |
can you post a pic of the poo> | |
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-- Kara From Liverpool England adopted at five months old 26th December 2009 EPI dx August 2010 tli<1.00 folate 8.3 cobalimin 611 Antibiotics 2 Oxytet antibiotics 3 times a day also if we cannot fit the Oxytet in she has Tylan 1/8th teaspoon before her meals Food- Ashenbank Lamb Casserole twice daily equalling 3 cups per day possibly more Zantac (ranitadine) 75 mg 30 minutes before each meal as too much acid was being produced enzymes-Panzym 1 gram per meal twice daily ( 1/4 teaspoon ) plus one Lypex B12 injection once every three weeks one Chemeyes B12 with intrinsic factor of 40 daily one Antepsin before bedtime alergies to beef pork chicken and white fish confirmed by blood test 33.6 kilos in weight as of 5th May 2013
"UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 3815 |
http://www.epi4dogs.com/apps/forums/topics/show/8027618?page=1
this was my thread
have a read
jx | |
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-- Kara From Liverpool England adopted at five months old 26th December 2009 EPI dx August 2010 tli<1.00 folate 8.3 cobalimin 611 Antibiotics 2 Oxytet antibiotics 3 times a day also if we cannot fit the Oxytet in she has Tylan 1/8th teaspoon before her meals Food- Ashenbank Lamb Casserole twice daily equalling 3 cups per day possibly more Zantac (ranitadine) 75 mg 30 minutes before each meal as too much acid was being produced enzymes-Panzym 1 gram per meal twice daily ( 1/4 teaspoon ) plus one Lypex B12 injection once every three weeks one Chemeyes B12 with intrinsic factor of 40 daily one Antepsin before bedtime alergies to beef pork chicken and white fish confirmed by blood test 33.6 kilos in weight as of 5th May 2013
"UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 2062 |
Will keep good thoughts for you and Gigi and hope Gigi gets better. Hugs
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-- Paula and Maya (bday 12/21/06) (diagnosed 10/26/10 TLi 1.5, B12 659 (ref:249-733), weight 52 lbs. After 30 days, retested B12/folate - B12 plummeted to 200, which greatly affected her personality. After following B12 protocol, currently giving weekly B12 shots at home. Weight in July 2012: 75 lbs - the picture of health.
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Member Posts: 1665 |
Hugs and healing prayers for you and Gigi... | |
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-- Dar and Kodi, From Washington state Kodi (GSD female) , born August 19, 2010 , was diagnosed July 15, 2011 at 11 months .Lowest weight, 47 lbs, weight as of 4/27/2013 62.9 lbs. Our goal for her at this time is now 65 lbs. !!! And she made it!! . TLI .07 , Folate 9.4 , Cobalmin 536 . Kodi is on Great Life grain and potato free Buffalo,1 & 1/2 cups kibble with added canned or home cooked bison 3 times a day with 2 teaspoons of enzymes from Diane. (Also some home cooked meals)1 Trinfac-B capsule once a day. Also 1/8 t. of ground coriander, 1/16 t. of ground fennel seed and cinnamon per meal (for stomach acid and burps). Having acupunture with a holistic vet for food and enviromental allergies, doing accupressure points and taking 1000 mg.Super Quercetin daily for allergies.
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Member Posts: 26 |
Thank you everyone for the kind words. The results came back and she does not have cancer. I am still a little mad at the Vet for scaring me and putting her through surgery needlessly. Once we get her through this I will be obtaining another Vet. We are still struggling with the incision site. She dug it open on Monday night so an emergency trip back to the Vet to have a drain put in! Ugh what a time we are having! As for a photo of the poop no I didn't have my phone on me and I clean her poop up right away. If it does happen again I will post photos. Has anyone had trouble with fluid in the belly of their EPI dog? Gigi's belly is like a basketball and I was thinking it was the prednisone she was on but it doesn't seem to be clearing. | |
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Member Posts: 2062 |
Does the fluid in her belly seem to make her uncomfortable? How long has it been there? | |
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-- Paula and Maya (bday 12/21/06) (diagnosed 10/26/10 TLi 1.5, B12 659 (ref:249-733), weight 52 lbs. After 30 days, retested B12/folate - B12 plummeted to 200, which greatly affected her personality. After following B12 protocol, currently giving weekly B12 shots at home. Weight in July 2012: 75 lbs - the picture of health.
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Member Posts: 1513 |
Have you had a look at PLE under the Concurrent Conditions tab? It sounds like Gigi has some of the main symptoms, including the lymph swelling and abdominal fluid (ascites) Has Gigi had any blood work to check protein levels? | |
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- Barb -
Mom to Cedar, diagnosed with EPI Nov 1, 2010, TLI 1.2, Feb 2013 B12 653 (150-700), Folate 23 (7-39); B12 injections weekly; 1 3/4 tsp pancreatin 8X/meal, 1 1/4 c TOTW Pacific Stream or Sierra Mountain + 1/2 c add ins (pork, salmon, sardines, haddock, egg, pumpkin are the usual), 1/3 c water, incubated x 30 minutes; 2 meals/day; current weight 68.9 lbs. Also has Pannus; treated with tacrolimus ointment 2 x daily each eye and gets 100 ug Vit E daily for immature cataracts. Also Mom to pupkids Bree and Griffin, and catkids Abby, Diamond and Max...and skinkid Ayden
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Member Posts: 1513 |
Just wondering how Gigi is doing today? | |
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- Barb -
Mom to Cedar, diagnosed with EPI Nov 1, 2010, TLI 1.2, Feb 2013 B12 653 (150-700), Folate 23 (7-39); B12 injections weekly; 1 3/4 tsp pancreatin 8X/meal, 1 1/4 c TOTW Pacific Stream or Sierra Mountain + 1/2 c add ins (pork, salmon, sardines, haddock, egg, pumpkin are the usual), 1/3 c water, incubated x 30 minutes; 2 meals/day; current weight 68.9 lbs. Also has Pannus; treated with tacrolimus ointment 2 x daily each eye and gets 100 ug Vit E daily for immature cataracts. Also Mom to pupkids Bree and Griffin, and catkids Abby, Diamond and Max...and skinkid Ayden
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Member Posts: 26 |
Sorry with the holidays I have been out of the loop. I am not sure about how long the fluid has been in her belly. I just thought she was putting on weight as she has this little round belly but I asked the Vet about it and he said it was fluid. I have not checked the tab for concurrent conditions and I will do so. No her blood has not been tested for protein? Is this a bad condition? Can I get it cleared up? Needless to say I am in the process of looking for a new Vet! I am sick of mine not being able to handle my EPI dog and always suggesting surgery for everything. I just cannot afford his shenanigans anymore! Overall Gigi is doing well. I think the fluid does makes her a little uncomfortable and I think I am going to start cutting her food back too. She is fed three times a day one cup of food with a 1/2 tsp. of enzymes. Thanks!
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Member Posts: 54 |
Hi there, So sorry to hear Gigi is not feeling so well Watch her breathing, if she seems short of breath, take her in. They may want to drain the fluids from her chest as they should'nt be there. Also, they can look at the fluid under the microscope to see what it looks like and what kind of cells it contains. Its something your vet should look into especialy if it starts to make her uncomfortable. Meanwhile all I can offer is a big hug to you and to your sweet little Gigi. xx | |
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Member Posts: 1782 |
I would take her to an Internal Medicine Specialist or a teaching school. They would be your best bet to figuring out what all is going on. You will probably need a referral. The first visit may be a bit more but after that the visits are not more than my regular vet visit. | |
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Member Posts: 26 |
My Vet's response to me asking where the fluid is coming from...is she has cancer and she needs surgery immediately! He is an idiot! Her lymph node came back negative for cancer but he is sure there is something in her belly and he wants to operate...hence I am doing my research and trying to find a capable Vet in my area. I don't want to just jump to just any Vet as Gigi needs special care and this Vet didn't even diagnose her with EPI...I did! After finding this wonderful website and all the helpful people here. It has been a really frustrating two years with him. Sometimes her breathing does seem labored. I need to find a Vet ASAP. The closest teaching hospital to me is Cornell University and I am just not sure I can afford the trip or another large Vet bill with starting over with them. I have a large Vet bill to pay now thanks to my current Vet. Thank you for the advice and support! It is much appreciated! | |
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Member Posts: 1782 |
In the long run, it could be cheaper by finding an IMS. Here is a link to look for one in your area. http://www.acvim.org/websites/acvim/index.php?p=2 | |
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Member Posts: 2062 |
Do you live near Ithaca, then? Have you looked at the Recommended Vets tab?
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-- Paula and Maya (bday 12/21/06) (diagnosed 10/26/10 TLi 1.5, B12 659 (ref:249-733), weight 52 lbs. After 30 days, retested B12/folate - B12 plummeted to 200, which greatly affected her personality. After following B12 protocol, currently giving weekly B12 shots at home. Weight in July 2012: 75 lbs - the picture of health.
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Did you ask your vet where the fluids were coming from? Is it pleural effusion?
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