EPI * Exocrine Pancreatic Insufficiency
managing EPI
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| Forum Home > General Discussion > Podcast - I want to know your story with EPI | ||
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Member Posts: 1 |
Hey there. We're doing a podcast tomorrow regarding Pancreatitis. If anyone wants to call in to share their personal story, the number is 800-405-6425. The show starts at 1pm PST on adrenalineradio.com. You can also tell me here today what your experience is with EPI. I'm learning about it and my husband thinks it's what was wrong with his doxie. Also ANY VETS out there who'd be willing to be interviewed, I'd love to hear from you!!!! Write me here and also we are on FB at letstalkaboutdogs as well as on Twitter @letstalkdogs. | |
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-- Cynthia
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Member Posts: 318 |
Cynthia, Bless you for doing this piece! Sarge had Pancreatitis about 2x per year before changing into EPI. We almost lost him because of the incorrect advise we recieved from out vet after diagnosis-he said they almost never survive and that they usually dont regain the weight. After 3 months of the wrong treatment we found wonderful people online that were dealing with the same condition. Because of the wonderful EPI community so many pets are saved each year! There are thousands of us all across the world that are willing to lend a shoulder and ideas for pet owners to take back to their vets. When Sarge was diagnosed the information was not on the internet that their is today. Today it is nice to hear that so many pets are diagnosed quickly and get the correct treatment so they do not need to suffer. NO two EPI pets are the same and having a support group is a very important part of being able to deal with EPI successfullly.
Thank you again I look forward to listening in! FYI: The vet is now giving correct information about EPI and has learned a lot. | |
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-- Enzyme Diane, Diane Sloan, Concord Twp, OH, Pancreatin **17.64 oz Pancreatin 6x Digestive Enzymes $70-Compared to Viokase V ** Enzyme Supplement Orders: www.EnzymeDiane.com, Sarge DOB 11/31/00 GSD/EPI Dx'd 8/05 @ 71# TLI .3, Cobalamin 99, Folate 15.5. 2tsp Pancreatin 6x Supplement, 2 c 4 Health 2x per day, b12 injections. RIP Sarge you touched the lives of so many 4/2013 ( from DM-EPI was the least of our worries)
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Site Owner Posts: 10218 |
Thank you Cynthia for contacting me.... Hi everyone...... i will be speaking on the show tomorrow, Thursday Jan 3. It will be a PodCast on the show "Let's Talk About Dogs" on AdrenalineRadio so i should be able to share/upload the PodCast link on the website later... Anyway.... even though this show tomorrow is about Pancreatitis... i will speak for about 5 minutes at the end of the show about the EPI / EPI website and David A. Williams, MA, VetMB, Phd, Diplomate ACVIM, Diplomate ECVIM-CA, Professor, Veterinary Clinical Medicine will speak for about 15 minutes on the condition EPI. The show is being done in Calif..
I am scheduled to speak 4:40 EST / 1:40 PST, (i speak for 5 minutes) Dr. Williams is scheduled for 4:45 EST / 1:45 PST (Dr. Williams speaks for 15 minutes)
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils. In Feb 2013, Izzy developed a very serious condition called IMHA which she (thankfully) beat and is now in remission. We also discovered that now, at 8 years old, she not only has EPI, but also Diabetes and Low Thyroid. Izzy was able to receive excellent care because of the kindness of so many here on epi4dogs and is currently doing extra-ordinarily well. If anyone could spend a day with Izzy, they would never guess that she has any health problems!
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Member Posts: 2060 | Good luck, Olesia! | |
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-- Paula and Maya (bday 12/21/06) (diagnosed 10/26/10 TLi 1.5, B12 659 (ref:249-733), weight 52 lbs. After 30 days, retested B12/folate - B12 plummeted to 200, which greatly affected her personality. After following B12 protocol, currently giving weekly B12 shots at home. Weight in July 2012: 75 lbs - the picture of health.
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Member Posts: 3807 |
this is awesome
i wish you luck and support
jeanx | |
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-- Kara:: adopted at five months old 26th December 2009 EPI dx August 2010 tli<1.00 folate 8.3 cobalimin 611 Antibiotics 2 Oxytet antibiotics 3 times a day also if we cannot fit the Oxytet in she has Tylan 1/8th teaspoon before her meals Food- Ashenbank Lamb Casserole twice daily equalling 3 cups per day possibly more Zantac (ranitadine) 75 mg 30 minutes before each meal as too much acid was being produced enzymes-Panzym 1 gram per meal twice daily ( 1/4 teaspoon ) plus one Lypex B12 injection once every three weeks one Chemeyes B12 with intrinsic factor of 40 daily one Antepsin before bedtime alergies to beef pork chicken and white fish confirmed by blood test 33.6 kilos in weight as of 5th May 2013
"UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Member Posts: 983 |
Make us proud O. | |
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-- Brenda & Sailin Suzie. Worlds Greatest Boat Dog
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Member Posts: 902 |
Awesome Olesia - you're getting to be quite the famous EPI lady:) | |
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-- Tracey and Sofie Sofie, Shiloh shepherd, born March 2010; diagnosed April 2011. Currently eats 5 cups of Taste of the Wild Sierra Mountain (has no chicken in it) per day plus a bit of cooked beef, pork, tripe or liver, etc. with 1 tsp. of 8x enzymes per cup. 2 Trinfac-B Intrinsic Factor per day. 1/4 tsp. Tylan 2x per day with meals - every time I try to stop the SIBO comes back. Looking at probiotics..
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Member Posts: 740 |
I just stumbled across this now, and am listening to Olesia on the radio. This is wonderful! | |
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-- Mickey, Jack russell, 13.5 years. DOB 6/24/99.Dx chronic pancreatitis June 2012. Enzyme Diane 6x - 1/4 teasp in capsules before meal.. Mickey is eating white rice and eggs for his diet, I changed to see if it might help his acid stomach situation. It seems to be working. 1620meq potassium citrate before bed for urine alkalinization, due to hyperuricosuria. Daily: 1 capsule Cosequine 2x a day, 1 Denamarin. I give him 1 shot of .1ml Adequan subq weekly for arthritis. Assisi loop once a day for 15 mins on his lower back to help lumbar stenosis, also had his third cold laser therapy on his spine on 5/20/2013. spec cPl: down to 584!! ug/L woohoo!! Tli : down to 23.8ug/L Folate>24ug/L cobalamin 896 ug/L
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Member Posts: 318 |
She sounds wonderful she is giving such great information and so is Dr Williams. What a great show!
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-- Enzyme Diane, Diane Sloan, Concord Twp, OH, Pancreatin **17.64 oz Pancreatin 6x Digestive Enzymes $70-Compared to Viokase V ** Enzyme Supplement Orders: www.EnzymeDiane.com, Sarge DOB 11/31/00 GSD/EPI Dx'd 8/05 @ 71# TLI .3, Cobalamin 99, Folate 15.5. 2tsp Pancreatin 6x Supplement, 2 c 4 Health 2x per day, b12 injections. RIP Sarge you touched the lives of so many 4/2013 ( from DM-EPI was the least of our worries)
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Member Posts: 1683 |
Great job, O! It was good to hear Dr. Williams, too. I really loved that he (and Olesia) talked about looking for subtle signs and testing early. I didn't get home in time to hear the whole hour...I tuned in just in time to hear Olesia be introduced...now I will have to go back and listen to the whole thing when it's available. The part I heard was well worth it! I'll have to remember Let's Talk About Dogs next Thursday, too! Thank you for doing this interview, Cynthia! | |
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-- Mom to Pixie, 7 year old sheltie,inherited from my mother-in-law 3/11. Dx of EPI 9/09. TLI in 10/09 was 0.4 ug/L. As of 12/2/11, Folate fasting levels was 13.6 ug/L, and Cobalamin fasting was 615. Current weight 21.7 lbs (4/13), solid member of the Chunky Monkey Club! Ideal weight around 17, I think, but she's not obese at this weight, so maybe 17 is a little low. Feeding grain free - Natural Balance canned lamb and Nature's Variety Instinct Limited Ingredient Lamb kibble. Giving slightly less than 1/2 tsp Pancreatin 8X per 1/2 cup of food. Tylan currently 1x/day. Also takes 1/2 tablet pepcid for stomach upset 2x/day. Primal Defense probiotics 1/8 tsp, 3x/week. Getting bi-weekly B-12 shots. Our little pack also includes my husband, our 12 year old sheltie, Lucy, and our 9 year old sheltie, Einstein.
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Member Posts: 4514 |
Way to go Olesia!!!! I can't wait for the link...I had to run out And...a special THANK YOU to letstalkaboutdogs for making this happen - thanks Cynthia! Kudos to you for all you do also! | |
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-- Michele http://gardensoftranquility.com/ Jackie - Diagnosed at 9 mos (09/09) - TLI 0.3 and low end of B12. Pancreatin 8x dosing 3/4tsp per cup. Natures Domain, Trinfac-B Intrinsic Factor daily, probiotics and Duralactin in the am. Mega-E: cisapride and metoclopramide. Stable and happy 122lbs - thanks to all the beautiful souls on this forum, we could not have done it without YOU. Dexter - Diagnosed 11/10 approx 3 yrs of age. We failed fostering and now he has his forever home
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Site Owner Posts: 10218 |
OMG.. i was SOOooooooooo nervous, i wrote notes did bullet points and reviewed them all day long.... my stomach was in knots! And then i only got thru half of what i prepared and even then, i don't think i wasn't concise in explaining things.... but i won't know for sure until later tonight when the PodCast will be ready....then i will upload it on this site. Dr. Williams was wonderful though, as always i enjoyed listening to him. He has such a nice easy way of explaining things. I am thrilled that he made time to do this PodCast, as i actually bothered him about it while he was on a family vacation.... but he is so nice, he simply agreed to do it! Although this wasn't an EPI segment... but rather a Pancreatitis segment... it was nice to be able to share with the public how EPI can develop from chronic Pancreatitis and what happens, how it is treated, etc. Okay... my nerves have to calm down now.... so now I am going to eat dinner, and watch mindless TV ..... and just unwind....... | |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils. In Feb 2013, Izzy developed a very serious condition called IMHA which she (thankfully) beat and is now in remission. We also discovered that now, at 8 years old, she not only has EPI, but also Diabetes and Low Thyroid. Izzy was able to receive excellent care because of the kindness of so many here on epi4dogs and is currently doing extra-ordinarily well. If anyone could spend a day with Izzy, they would never guess that she has any health problems!
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Site Owner Posts: 10218 |
Okay....not sure how to load the PodCast on the website..will see if someone can help me with this...... but in the meantime, if anyone wants to listen to it, please go here and download the 1/3/13 "Let's Talk About Dogs" To listen to the EPI portion... please scroll thru until you get to about 40 minutes into the program. | |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils. In Feb 2013, Izzy developed a very serious condition called IMHA which she (thankfully) beat and is now in remission. We also discovered that now, at 8 years old, she not only has EPI, but also Diabetes and Low Thyroid. Izzy was able to receive excellent care because of the kindness of so many here on epi4dogs and is currently doing extra-ordinarily well. If anyone could spend a day with Izzy, they would never guess that she has any health problems!
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Member Posts: 1664 |
thanks Olesia.. can't wait to hear you!!! | |
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-- Dar and Kodi, From Washington state Kodi (GSD female) , born August 19, 2010 , was diagnosed July 15, 2011 at 11 months .Lowest weight, 47 lbs, weight as of 4/27/2013 62.9 lbs. Our goal for her at this time is now 65 lbs. !!! And she made it!! . TLI .07 , Folate 9.4 , Cobalmin 536 . Kodi is on Great Life grain and potato free Buffalo,1 & 1/2 cups kibble with added canned or home cooked bison 3 times a day with 2 teaspoons of enzymes from Diane. (Also some home cooked meals)1 Trinfac-B capsule once a day. Also 1/8 t. of ground coriander, 1/16 t. of ground fennel seed and cinnamon per meal (for stomach acid and burps). Having acupunture with a holistic vet for food and enviromental allergies, doing accupressure points and taking 1000 mg.Super Quercetin daily for allergies.
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Member Posts: 3807 |
Just listened
well done
and its amazing that Dr Williams was able to help out
Jean | |
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-- Kara:: adopted at five months old 26th December 2009 EPI dx August 2010 tli<1.00 folate 8.3 cobalimin 611 Antibiotics 2 Oxytet antibiotics 3 times a day also if we cannot fit the Oxytet in she has Tylan 1/8th teaspoon before her meals Food- Ashenbank Lamb Casserole twice daily equalling 3 cups per day possibly more Zantac (ranitadine) 75 mg 30 minutes before each meal as too much acid was being produced enzymes-Panzym 1 gram per meal twice daily ( 1/4 teaspoon ) plus one Lypex B12 injection once every three weeks one Chemeyes B12 with intrinsic factor of 40 daily one Antepsin before bedtime alergies to beef pork chicken and white fish confirmed by blood test 33.6 kilos in weight as of 5th May 2013
"UNCONDITIONAL LOVE WAS INVENTED BY DOGS"
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Administrator Posts: 2146 |
Hi all, there's now a Podcast page accessible from the main navigation with a streaming player you can listen with on the page itself as well as a link to download the podcast. Great job, Cynthia, Olesia and David! | |
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Craig Lulu (aka Miss Lulupants) is a 5 year old 'Red Shepherd' (Australian Red Heeler x Long-hair GSD) who lives in Adelaide, South Australia. Diagnosed with EPI in April 2010. Currently on one Creon 25k per meal;
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Administrator Posts: 2146 |
Am also shifting this thread to the General Discussion area now so everyone will see it and have a listen to this fab show... | |
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Craig Lulu (aka Miss Lulupants) is a 5 year old 'Red Shepherd' (Australian Red Heeler x Long-hair GSD) who lives in Adelaide, South Australia. Diagnosed with EPI in April 2010. Currently on one Creon 25k per meal;
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Member Posts: 2115 |
Got a load to do at the moment but can't wait to listen.... Val | |
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-- Razzy, GSD. EPI for 4 1/2 years... sadly lost to cancer 30th July 2011 aged 9 1/2 years.
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Site Owner Posts: 10218 |
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-- Olesia, owned by Izzy-45lb SWD, Diagnosed at 1.5 years old - TLI results 1.3, Stable almost 7 yrs! Once stable, was able to reduce enzymes to only 1/2 tsp of Enzymes with each meal, but after almost 4 years of stabilization... had to increase the amount of enzymes to 3/4 teaspoon with each meal. Feed various grain-free kibble+real meat, 6x pancreatin enzymes from EnzymeDiane. I give 1 tsp of coconut oil one day and 1 tsp salmon oil next day, and also give canned sardines packed without salt or canned herring for extra omega oils. In Feb 2013, Izzy developed a very serious condition called IMHA which she (thankfully) beat and is now in remission. We also discovered that now, at 8 years old, she not only has EPI, but also Diabetes and Low Thyroid. Izzy was able to receive excellent care because of the kindness of so many here on epi4dogs and is currently doing extra-ordinarily well. If anyone could spend a day with Izzy, they would never guess that she has any health problems!
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Member Posts: 56 |
Um, guys? I just read up on pancreatitis...and I wonder if that's what my Rebel has suffered from a couple of times over the years. I thought he had minor bloat (without torsion), but reading the petwebmd description of pancreatitis, I wonder if that's what he had. And it sounds like if he does have epi, that those could have been precursors... *sigh* I need to listen to that podcast I guess. | |
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-- Chris Mom to:Rebel (9 year old GSD), Guinness (11 year old Brittany),Tank (12 year old Cardigan Welsh Corgi), 3 great cats, 2 great kids
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Hurry and post it!!!! 
Congratulations on even one more way to get the word out!!! I see you on TV next!!!!!
Lulu is super-smart, a bit plump and very pretty (everybody says so - including her!).You must login to post.
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