EPI * Exocrine Pancreatic Insufficiency

managing EPI

Debra


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Joined Jul 30 2009
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FEMALE
UK
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EPI * Exocrine Pancreatic Insufficiency

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About Me

I was owned by a beautiful 2 year old GSD called Bonnie.

When she was diagnosed at 7 months in March 2008  with EPI, I didn't fully know what it involved. We found this website in July 2009.  The help and support I received was overwhelming.  The understanding and advice I received meant the world to me after going it alone for so long.  The time that Bonnie and I had together here was truly the happiest and the humour helped in stressful times.  We shared the good and the bad times.

 

 Your Journey may just be beginning, be strong and take it all in, ask your vet as many questions as you need to.  Some EPIer's journeys are smooth, some are bumpy and some just aren't able to make the journey at all.  Sadly Bonnie's journey ended in September 2009, we weren't able to fully reap the benefit of the good advice and support in the early days. 

 

You will find the EPI Mums and Dads here are dedicated in ensuring there's support and advice for all, none more so than our EPI MOM Olesia, who's own journey made her set up this website to help and support others...A true angel.

 

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11 Comments

Reply Melissa
12:06 PM on March 05, 2010 
Hi Debra,

Yes, I speak portuguese, and thanks for the offer, there are so many technical words, that sometimes I'll have to ask.
Oh, I love this site, there are so many info about everything related with the disease.

Maddie is fine... but sometimes I still wonder if the treatment is right or if it is enough and if it's all I can do for her.

In here we have a monthly Westies meeting, named as Whitey's Meeting ("Encontro de Branquelos" for you to Google), and all of them always bark to bigger dogs.

Kisses,
Melissa
Reply Melissa
10:32 AM on February 26, 2010 
Hi Debra!

I love Chloe!! Saw her photo at one of your posts.
I've 3 westies, one (that in the photo) is Maddie (2yr), she was recently diagnosed with EPI, the others are Kenzo, with 5yr and Olivia with 2 months.

I'm brazilian, so sorry about my english.
Reply mac
07:52 PM on January 20, 2010 
cheers ,i am going to ask the local Butcher,Environmental Health Officer, local slaughter house & then my local MP why pancreas is not available for dogs
Reply Elly & Tyler
10:55 AM on October 22, 2009 
Hi Deb, thank you so much for your reply. I will order some Lypex later from vetuk as that is the same site I am getting the Panzym from. Yes I know what you mean about hungry dogs. While Tyler is waiting for his food he keeps jumping on me and mouthing my hands,( I think he is trying to eat me, or telling me if I don't get fed soon, I'll eat you!! ) ha ha. When I'm working it's difficult to get a long enough lunch break to prepare his food, as he is on 3 meals a day now . So the Lypex will be better for this. When you say one or two capsules with each meal, how much food was that with? and do I still need to soak the dry food?
Many thanks
Elly and Tyler
Reply Elly & Tyler
08:15 AM on October 22, 2009 
Hi Debra, I saw on one of the posts you said that with Bonnie you had used an enzyme that didn't need incubating! I hope you don't mind me asking, but what one was that? Tyler is on Panzym. I think I read somewhere that no need to incubate, but I have been doing for about 20 - 30 minutes.
Many thanks
Elly and Tyler
Reply Michele
09:31 AM on October 06, 2009 
Your message did make it through to me - hope this come 2 u. One of my friends was helping me research this and she found this site - she is an animal LOVER and without her I might still be lost. If you ever have another issue and for some reason can't find it here - but I can't imagine not - even if it deals with other animals (cats), just let me know - I also have an excellent forum for cats. I am so sorry u found this late - but glad u found it. I hope I can give back to all these great people supporting us. You have a great day and hugs from Jackie and our 2 cats! :-)))
Reply Michele
07:11 AM on October 06, 2009 
Debra, I am new to this site, but when I saw your dog passed away - I just had to send u my condolences. I am teared up for you because I just can't imagine ever losing my Jackie. These animals are angels that come into our lives and enrich it and for whatever time it may be, we are lucky. Your pup was lucky to have had you. I lost an 8 yr old GSD in a house fire and to this day I still tear up over her - but I think of her eating my shoes, jumping all over me and I smile. Much love from the Daniels family.
Reply Julie & Angel
07:07 AM on September 26, 2009 
Debra, my lovely, this isn't the time, I know, to be saying that I never knew you sent me a post 7 days ago- I don't know what went wrong there.
I understand more than you know ....... I have been through this several times and last year's nursing and loss was soul destroying for me.

You are all in my heart and constant thoughts. Bless you all.

Much love and warmest of hugs,
Julie xx
Reply Debra
10:15 AM on September 18, 2009 
Hi Julie,
thank you so much for your kindness, gosh you've set me off. I am a total wreck Julie. I am so angry to think we could have been treating her a week ago and thats if he's got it right and it is UTI.
You know Julie, for the first time last night, I actually gave up....just for a few minutes, all the fight went out of me and I thought how can I carry on like this.
I so thought I could fight anyone and anything for Bonnie. I've gone against my familys thoughts of whats best for her. I fought so hard to keep her alive. But I have to be honest and say I have very little quality of life and in so doing what I'm doing I have put the same on my Mum...We can't go out for long, not go far, back in time for midday meal...not leave her too long, back in time for evening meal...to ensure her poops dont happen during the night. and then this week sleeping on the sofa, waking up at all hours albeit for 10 minutes....I am shattered and weak. I feel hopeless. I can't write that on the forum, that would really upset the poor new ones, who have no idea how this takes your life over. and I have never questioned doing it....until now and I feel awful, like I've betrayed her.
I will certainly keep your number nearby, just the thought of you on the other end is a great comfort and I thank you for that.
Bless you Julie.
Debra x
Reply Julie & Angel
10:05 AM on September 18, 2009 
Hi Debra,
Hope you don't mind my emailing you privately. Just want to say that I have been thinking about you and dear Bonnie all week. I have had a set back and so didn't get to continue Reiki Healing for Bonnie after the initial one as intended. Things have settled down now and so I will continue.
I am leaving you with my phone number if you need an extra ear. 01480 395591.

Holding you both in my heart, thoughts and healing energy,
Julie x
Reply amber
02:29 PM on August 18, 2009 
Debra,
Thanks for your reply - (computer problems my excuse for not answering you sooner) Shall try your suggestions - or see if 'cut & paste' will work !!
amber

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