Rio only diagnosed in December 2017

Epi4Dogs Foundation Inc.’s mission is the advancement of science and education relating to EPI (Exocrine Pancreatic Insufficiency), yielding useful insights and positive outcomes in better managing EPI in dogs and cats. Our goals are to support and/or collaborate with veterinary EPI research and researchers, and to promote EPI awareness by educating the general public, pet owners, pet organizations, rescue and shelter organizations, veterinary schools and veterinarians.
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Jean
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Posts: 1707
Location: South Liverpool
Country: United Kingdom - England
Pet name: Kara, lost 10th May 2019
My name: Jean

Re: Rio only diagnosed in December 2017

Post by Jean » 11 Jan 2019, 04:11

blimee!

I think your vets need to speak to an EPI specialist,

They can get a telephone referral from Liverpool small animal hospital. for advice

we also use the wet trays as a topper for Kara, she has grain free James Wellbeloved grain free lamb and veg, as a main food

two trays would weigh 395x 2 grams, so thats 790 grams, plus german shepherd biscuits, so 2 Lypex is probaly not enough, I would be temped to give 3, in fact definitely

what are the German Shepherd biscuits you mention

tummy rumbles

so, she is struggling with small intestinal bacterial overgrowth, this can be combated by the correct enzymes, but needs to be got rid of, have the vets talked to you about antibiotics over here Oxytetracycline is the biggie, but the recommendation here is a course of Tylan, which you can get via the vet, or on prescription from Vio Vet, on line and that is twice daily for 45 days depending on weight

have you asked your vet to explain why they are suggesting what they are ?

Jean
My name is Jean we live in Liverpool in Uk

I am the Forum Director which I am very proud of

My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day

Lowest weight 39 pounds

We used Panzym enzymes, Tylan and Chemeyes b12 capsules

Sadly, on 10th May 2019, we lost her to DM


Jeanx

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Jean
Forum Director
Posts: 1707
Location: South Liverpool
Country: United Kingdom - England
Pet name: Kara, lost 10th May 2019
My name: Jean

Re: Rio only diagnosed in December 2017

Post by Jean » 11 Jan 2019, 06:56

i meant to comment on your question about chicken

its perfectly possible she has gained an intollerance for chicken, my girl did, its weird

as for treats, its not adviseable to give any treats, anything that goes into the mouth MUST be enzymed,

keep a journal and record everything

I am just bewildered about the advice you have been given

Jeanx
My name is Jean we live in Liverpool in Uk

I am the Forum Director which I am very proud of

My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day

Lowest weight 39 pounds

We used Panzym enzymes, Tylan and Chemeyes b12 capsules

Sadly, on 10th May 2019, we lost her to DM


Jeanx

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Patsy
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Posts: 264
Country: United Kingdom - England

Re: Rio only diagnosed in December 2017

Post by Patsy » 11 Jan 2019, 09:40

When you have a pet with a complicated diagnosis like epi, it helps to see just one vet, when you are confident they know what they are doing , or are discussing it with you. With the large groups, with part timers, they depend on the notes passed on to them, and can’t relate personally with the condition of the dog,or recall any important discussions you’ve had. You need a good relationship.
One of my previous dogs saw three different people, and the different early signs of kidney disease didn’t connect up in their notes, , meaning too much time was lost, and so was he.

With vets, you are providing their income and Range rovers, you employ them. I seriously think that some of them should be reported for missed diagnoses. Now you are getting to know epi, double check everything they say, epi4dogs has got the right treatment worked out through the expertise of top research institutes and the experience of thousands of members who struggled like you.
As I say to everyone, you are now on an assertiveness course!
Springer spaniel Marti had Epi, PLE , MMM just to confuse me. She lived till 12yrs, chubby and happy despite eight years of epi.
Capsule enzymes suited her best. B12 supplements made her into a new dog!
After a cocker with PLN kidney disease, I now have two healthy rescues, a lively, suicidal , small ginger terrier, adopted with pneumonia, and gum disease needing nearly all his teeth out, and a fluffy grey toy poodle/terrier from Greece.

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Jean
Forum Director
Posts: 1707
Location: South Liverpool
Country: United Kingdom - England
Pet name: Kara, lost 10th May 2019
My name: Jean

Re: Rio only diagnosed in December 2017

Post by Jean » 11 Jan 2019, 13:50

Good to talk to you and Rob tonight I hope the new regime will work well

Jean
My name is Jean we live in Liverpool in Uk

I am the Forum Director which I am very proud of

My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day

Lowest weight 39 pounds

We used Panzym enzymes, Tylan and Chemeyes b12 capsules

Sadly, on 10th May 2019, we lost her to DM


Jeanx

Barb
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Posts: 918
Country: United States
State: New Jersey

Re: Rio only diagnosed in December 2017

Post by Barb » 11 Jan 2019, 14:07

Hello and welcome! Rio is a beauty!

You are in good hands with Patsy and Jean and our UK members. I just wanted to welcome you and endorse keeping a detailed journal of everything you give Rio each day (food, enzymes, antibiotics, B12) the amounts and the resulting poos. This will help you to figure out what is working and what needs to be tweaked.

The beginning stage is the hardest when you are trying to get everything balanced. It will get easier and will become just part of your day. Try not to feel overwhelmed, but we understand if you do. We have all been where you are. Hang in there. Rio is lucky to have you.

Barb

Rioismygirl

Re: Rio only diagnosed in December 2018

Post by Rioismygirl » 11 Jan 2019, 16:06

Thank you so so much, I’m so happy to have found this forum and have had a very lengthy conversation with Jean tonight who is incredible and I can’t tell you how much I’ve learnt from her in that 1 call. Xx

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Jean
Forum Director
Posts: 1707
Location: South Liverpool
Country: United Kingdom - England
Pet name: Kara, lost 10th May 2019
My name: Jean

Re: Rio only diagnosed in December 2017

Post by Jean » 12 Jan 2019, 03:27

you are welcome Sarah

Jean
My name is Jean we live in Liverpool in Uk

I am the Forum Director which I am very proud of

My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day

Lowest weight 39 pounds

We used Panzym enzymes, Tylan and Chemeyes b12 capsules

Sadly, on 10th May 2019, we lost her to DM


Jeanx

User avatar
Patsy
Member
Posts: 264
Country: United Kingdom - England

Re: Rio only diagnosed in December 2017

Post by Patsy » 14 Jan 2019, 17:30

A few days in the new routine, any improvement?
Springer spaniel Marti had Epi, PLE , MMM just to confuse me. She lived till 12yrs, chubby and happy despite eight years of epi.
Capsule enzymes suited her best. B12 supplements made her into a new dog!
After a cocker with PLN kidney disease, I now have two healthy rescues, a lively, suicidal , small ginger terrier, adopted with pneumonia, and gum disease needing nearly all his teeth out, and a fluffy grey toy poodle/terrier from Greece.

Rioismygirl

Re: Rio only diagnosed in December 2018

Post by Rioismygirl » 14 Jan 2019, 17:35

Hey! Yes, huge improvement thank you, thanks to Jean and Suj!! We’re getting solid poi’s now!! Have written a complaint letter to her ‘old’ vet, registered her with a recommended one who she due to see on Friday so all thanks to this forum and finding all you angels, my girl is in the mend!!

Can’t thank you all enough, I really can’t.

The long and short of it was I was told 2 x lyoex once a day and not with every meal - I’m still in shock!! But glad we’re getting somewhere now, and it’s only been 3 days since joining and posting! 😍😍😍

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Olesia711
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Location: North Carolina
Country: United States
State: North Carolina
Pet name: Izzy
My name: olesia

Re: Rio only diagnosed in December 2017

Post by Olesia711 » 14 Jan 2019, 17:59

Hi !

So glad you were able to speak directly to Jean, others posted to also help out and that you connected with Suj and now Rio is doing great!!!!! AWESOME!!!!!!!!!!!!!

Good to hear that his poos are decent .... when the poos are good, that means that pretty much the EPI protocol is in good balance. And that is the trick with these dogs, it is all about finding the right balance of enzymes, food, B12 and SID treatment if needed whether it is prebiotics or prebiotics & Probiotics or the right antibiotic.

One thing i do want to mention thou.... regarding the B12... with over 80% of all EPI dogs they need B12 supplementation. HOWEVER once you bring up the B12 levels to upper mid range.... you cannot stop the B12 but rather figure out a maintenance dose that Rio will need for life.... many of use opt to go with oral B12 for the maintenance part. I just don't want to see you get Rio all straightened out.. and then over time, things slide backwards because he B12 maintenance was overlooked.......... (if he started his EPI journey with low B12).
Olesia, was owned by Izzy, a 35lb Spanish Water Dog (SWD), Diagnosed at 1.5 years old - TLI results 1.. Izzy passed away on February 13, 2020 at 15 years old. She lived with EPI for 13+1/2 years. It was because of Izzy that Epi4Dogs was started... she was the inspiration. May her legacy of helping others with EPI continue for as long as needed.........

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