New EPI Diagnosis - Feeling Overwhelmed...

Epi4Dogs Foundation Inc.’s mission is the advancement of science and education relating to EPI (Exocrine Pancreatic Insufficiency), yielding useful insights and positive outcomes in better managing EPI in dogs and cats. Our goals are to support and/or collaborate with veterinary EPI research and researchers, and to promote EPI awareness by educating the general public, pet owners, pet organizations, rescue and shelter organizations, veterinary schools and veterinarians.
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Jean
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Location: South Liverpool
Country: United Kingdom - England
Pet name: Kara, lost 10th May 2019
My name: Jean

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Jean » 13 Jul 2021, 14:27

we still got excited 8 years later
My name is Jean we live in Liverpool in Uk

I am the Forum Director which I am very proud of

My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day

Lowest weight 39 pounds

We used Panzym enzymes, Tylan and Chemeyes b12 capsules

Sadly, on 10th May 2019, we lost her to DM


Jeanx

Barb
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Posts: 918
Country: United States
State: New Jersey

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Barb » 14 Jul 2021, 20:06

Glad you are trying the tylan first. I agree that is a good place to start.

Let us know how she does.

Barb

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Sadie'sMom
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Posts: 172
Location: Wisconsin
Country: United States
State: Wisconsin
Pet name: Sadie
My name: Lisa

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Sadie'sMom » 15 Jul 2021, 14:27

Hi Pam:

It's good to hear that. It's nice to know that this is normal for an EPI dog.

Thank you for taking the time to respond.

You & Tucker take care.

Lisa & Sadie
Sadie is a Nova Scotia Duck Tolling Retriever ("Toller" for short). She eats Authority Grain Free Chicken & Pea kibble. To make sure she ingests the enzymes, we mix some No Sodium Chicken Broth and a small handful of meat - chicken, hamburger, pork - and stir it up with her dog food (she eats like a champ now!). With each meal she gets 5 scoops (1 1/4 tsp's) of Diane's Enzymes and a WonderLabs B-12 with Intrinsic factor. She gets 1 Proviable-DC probiotic per day. Diagnosed in September 2019 with EPI. She has some issues with dry skin we are dealing with now.

Tuckaboo Pam
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Posts: 1345
Country: United States
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Pet name: Tucker
My name: Pam H.

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Tuckaboo Pam » 15 Jul 2021, 14:33

Lisa, I am not sure why Tuck goes that many times in a day, and I'm not sure it's normal. I have tried many variations on his routine, though, and I have decided to be happy with 4, since it used to be 12!

I guess it's nice to know you are not alone in the constant pickup game. It is for me!
Tucker was a shepherd/lab mix--- TLI 1.3, Folate 9.7, Cobalamin 666, Lipase 38. Took Diane's Enzymes 4 teaspoons/day, Wonderlabs B12 one capsule per day, and Tylan 1/16 teaspoon/ morning (to hold SID at bay). Taste of the Wild High Prairie, 1 1/2 cups/day, with a total of 4 cups of Fresh Pet. Stopped eating everything in sight, and went from 60 to 85 pounds! Tucker was my boyfriend, and my husband was OK with that. Tucker succumbed to hemangiosarcoma, but we cherished every day we had with that wonderful, beautiful boy. I will always, always miss my sweet big boy.

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Sadie'sMom
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Posts: 172
Location: Wisconsin
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Pet name: Sadie
My name: Lisa

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Sadie'sMom » 15 Jul 2021, 16:50

Hey Pam:

Bella goes that many times too. They say things come in 3's! Yes, 4 is much better than 12! As long as she is happy and healthy - that's what matters to us.

Have a great weekend.

Lisa & Sadie
Sadie is a Nova Scotia Duck Tolling Retriever ("Toller" for short). She eats Authority Grain Free Chicken & Pea kibble. To make sure she ingests the enzymes, we mix some No Sodium Chicken Broth and a small handful of meat - chicken, hamburger, pork - and stir it up with her dog food (she eats like a champ now!). With each meal she gets 5 scoops (1 1/4 tsp's) of Diane's Enzymes and a WonderLabs B-12 with Intrinsic factor. She gets 1 Proviable-DC probiotic per day. Diagnosed in September 2019 with EPI. She has some issues with dry skin we are dealing with now.

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Jean
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Posts: 1707
Location: South Liverpool
Country: United Kingdom - England
Pet name: Kara, lost 10th May 2019
My name: Jean

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Jean » 17 Jul 2021, 08:33

Kara used to go every hour without fail and sometimes more, she had no control whatever, I slept downstairs with her till we got her stable

and then maybe 3 times a day
My name is Jean we live in Liverpool in Uk

I am the Forum Director which I am very proud of

My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day

Lowest weight 39 pounds

We used Panzym enzymes, Tylan and Chemeyes b12 capsules

Sadly, on 10th May 2019, we lost her to DM


Jeanx

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Sadie'sMom
Member
Posts: 172
Location: Wisconsin
Country: United States
State: Wisconsin
Pet name: Sadie
My name: Lisa

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Sadie'sMom » 20 Jul 2021, 09:31

Morning Jean:

Wow.....that's a lot......I remember in the beginning Sadie had chronic diarrhea for about 3 weeks. I finally told my vet that something was really wrong with her and we wanted a second opinion. We were referred to a specialist who knew what tests to do, got her diagnosis figured out within a week or so when the lab work came back and we had a firm diagnosis. What a long, scary haul that was!

She is down to going 3-4 times a day and it all is normal --- and for that we are thankful and happy!

Thank you for sharing your story. Hope all is well.

Lisa & Sadie
Sadie is a Nova Scotia Duck Tolling Retriever ("Toller" for short). She eats Authority Grain Free Chicken & Pea kibble. To make sure she ingests the enzymes, we mix some No Sodium Chicken Broth and a small handful of meat - chicken, hamburger, pork - and stir it up with her dog food (she eats like a champ now!). With each meal she gets 5 scoops (1 1/4 tsp's) of Diane's Enzymes and a WonderLabs B-12 with Intrinsic factor. She gets 1 Proviable-DC probiotic per day. Diagnosed in September 2019 with EPI. She has some issues with dry skin we are dealing with now.

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Olesia711
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Location: North Carolina
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State: North Carolina
Pet name: Izzy
My name: olesia

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Olesia711 » 20 Jul 2021, 10:53

Prior to diagnosis, my Izzy also went about 12 times a day..... and you could tell just by looking at her expression that she was mortified.... Once we started Izzy on the enzymes, right food, ... and she had to take Tylan too, within a short time she became stable and she went anywhere between 2 to 3 times a days.... huge improvement from 12 times a day!!!!!!!!!!!!!!!!!!!

Wonder if 12 times a day is the norm for untreated EPI???
Olesia, was owned by Izzy, a 35lb Spanish Water Dog (SWD), Diagnosed at 1.5 years old - TLI results 1.. Izzy passed away on February 13, 2020 at 15 years old. She lived with EPI for 13+1/2 years. It was because of Izzy that Epi4Dogs was started... she was the inspiration. May her legacy of helping others with EPI continue for as long as needed.........

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Jean
Forum Director
Posts: 1707
Location: South Liverpool
Country: United Kingdom - England
Pet name: Kara, lost 10th May 2019
My name: Jean

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Jean » 22 Jul 2021, 10:28

What is amazing is that you have nearly 60.000 views and 247 replies, wahooo
My name is Jean we live in Liverpool in Uk

I am the Forum Director which I am very proud of

My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day

Lowest weight 39 pounds

We used Panzym enzymes, Tylan and Chemeyes b12 capsules

Sadly, on 10th May 2019, we lost her to DM


Jeanx

User avatar
Sadie'sMom
Member
Posts: 172
Location: Wisconsin
Country: United States
State: Wisconsin
Pet name: Sadie
My name: Lisa

Re: New EPI Diagnosis - Feeling Overwhelmed...

Post by Sadie'sMom » 26 Jul 2021, 14:40

Hi Jean:

I hate to sound dumb - but I'm not sure what you are referring to as to views. And I have 247 replies??!! WOW - no wonder you all feel like family!!

Hope all is well on your end.

Lisa & Sadie
Sadie is a Nova Scotia Duck Tolling Retriever ("Toller" for short). She eats Authority Grain Free Chicken & Pea kibble. To make sure she ingests the enzymes, we mix some No Sodium Chicken Broth and a small handful of meat - chicken, hamburger, pork - and stir it up with her dog food (she eats like a champ now!). With each meal she gets 5 scoops (1 1/4 tsp's) of Diane's Enzymes and a WonderLabs B-12 with Intrinsic factor. She gets 1 Proviable-DC probiotic per day. Diagnosed in September 2019 with EPI. She has some issues with dry skin we are dealing with now.

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