I posted this on the old forum some years ago
you have this dog or cat and its ill, and it looks to you for help and you havent a clue, and they get thinner and thinner and more pathetic and you look on the website and you find this forum and it all falls into place, and so you visit your vet and tests are run, and you have a diagnosis, and your world falls apart, you did not sign up for this when this bundle of fur came to you, and it looks like it might not make it, and once you are out of the vets surgery you are on your own
most of the time with illnesses, its a few tablets and they are well, this time you find out EPI is for life and you basically crack up
you are introduced to new words, EPI SIBO ENZYMES B12 FOLATE etc etc and you are even more bewildered because you have never had to consider the internal workings of an animal
so again you visit this site and realise you are not on your own, and you start to breathe again, and you get support and love from all over the world and its so weird as your best friends cannot help but these folk can
I just want to say to all the new folk that we have all been there and "cried a river" and dont ever give up!!!!
we are five years down the line now and we still have issues now and again and I discuss them with my fellow UK friends and we come up with a solution just recently I changed Karas food with the insistance of Uncle Ian my vet and I had a long conversation with Anne Gillian and Val from the UK for thoughts and felt a lot more confident and I thank you all for your input
so please keep in touch new people its so important to fly the flag of EPI
Thank God for the internet
so all the new folk here recently please take heart and have a read on my thoughts
Jean
as you can see this is a long time ago and we no longer have my girl, but its totally relevant
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MY THOUGHTS ON EPI
- Jean
- Forum Director
- Posts: 1707
- Location: South Liverpool
- Country: United Kingdom - England
- Pet name: Kara, lost 10th May 2019
- My name: Jean
MY THOUGHTS ON EPI
My name is Jean we live in Liverpool in Uk
I am the Forum Director which I am very proud of
My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day
Lowest weight 39 pounds
We used Panzym enzymes, Tylan and Chemeyes b12 capsules
Sadly, on 10th May 2019, we lost her to DM
Jeanx
I am the Forum Director which I am very proud of
My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day
Lowest weight 39 pounds
We used Panzym enzymes, Tylan and Chemeyes b12 capsules
Sadly, on 10th May 2019, we lost her to DM
Jeanx
- adriannemary91
- Member
- Posts: 25
- Location: Madrid
- Country: Spain
- Pet name: HAPPY
- My name: Maria
Re: MY THOUGHTS ON EPI
Dear Jean;
I can remember the day I came to this page.
I was totally broken and abated by my baby's diagnosis.
My mind changed as soon as I get information. Photographs, stories, tips from all the EPI dogs's mums ...
I remember arriving home with a huge smile and telling my boyfriend " ok, honey, Happy is going to be ok"
Since then, everything went better.
You dont have idea how supported I felt. And now, i know, we are not alone.
I have no words, (even in spanish) to say thank you, to all of you. To all the lovely people who answer my questions in the forum and help Happy to feel better.
I can remember the day I came to this page.
I was totally broken and abated by my baby's diagnosis.
My mind changed as soon as I get information. Photographs, stories, tips from all the EPI dogs's mums ...
I remember arriving home with a huge smile and telling my boyfriend " ok, honey, Happy is going to be ok"
Since then, everything went better.
You dont have idea how supported I felt. And now, i know, we are not alone.
I have no words, (even in spanish) to say thank you, to all of you. To all the lovely people who answer my questions in the forum and help Happy to feel better.
Happy is a two and a half year old dog and has been diagnosed with EPI 2 on September 2019.
TLI= 1.19
Hills prescription diet i/d - 2 creon 10.000 per meal - Hidroxil B12 1 pill per day - probiotic 1 fortiflora ( royan cannin) per day.
Lowest weight 4,700 kg
Current weight : 6,800 kg
TLI= 1.19
Hills prescription diet i/d - 2 creon 10.000 per meal - Hidroxil B12 1 pill per day - probiotic 1 fortiflora ( royan cannin) per day.
Lowest weight 4,700 kg
Current weight : 6,800 kg
- Jean
- Forum Director
- Posts: 1707
- Location: South Liverpool
- Country: United Kingdom - England
- Pet name: Kara, lost 10th May 2019
- My name: Jean
Re: MY THOUGHTS ON EPI
Maria, its the way I felt in 2010
I am so pleased you and Happy are getting there, and have many years ahead
this FORUM was, and is my lifeline, and am proud to be its director
much love
J
I am so pleased you and Happy are getting there, and have many years ahead
this FORUM was, and is my lifeline, and am proud to be its director
much love
J
My name is Jean we live in Liverpool in Uk
I am the Forum Director which I am very proud of
My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day
Lowest weight 39 pounds
We used Panzym enzymes, Tylan and Chemeyes b12 capsules
Sadly, on 10th May 2019, we lost her to DM
Jeanx
I am the Forum Director which I am very proud of
My Kara born 21 July 2009 diagnosed with EPI by cTLI test August 2010 TLI = <1...folate 14 Cobalamin 408, shot down to 94, b12 injections every other day
Lowest weight 39 pounds
We used Panzym enzymes, Tylan and Chemeyes b12 capsules
Sadly, on 10th May 2019, we lost her to DM
Jeanx
- Olesia711
- Founder & Research Director
- Posts: 3922
- Location: North Carolina
- Country: United States
- State: North Carolina
- Pet name: Izzy
- My name: olesia
Re: MY THOUGHTS ON EPI
Thank you Jean for re-posting Your Thoughts on EPI.... a very good read!
And Maria, thank you so much for your very kind words ... so many us us have been in your shoes when are dogs were first diagnosed or struggling with EPI..... but by sharing personal experiences, collective knowledge, and working with actual EPI veterinarian researchers on how to better handle EPI, how to get it under good control..... has been a "gift" for so many of us..... that we in turn hope to help others too!
I am so glad to hear that "Happy" is doing well now ... that is AWESOME news!
And Maria, thank you so much for your very kind words ... so many us us have been in your shoes when are dogs were first diagnosed or struggling with EPI..... but by sharing personal experiences, collective knowledge, and working with actual EPI veterinarian researchers on how to better handle EPI, how to get it under good control..... has been a "gift" for so many of us..... that we in turn hope to help others too!
I am so glad to hear that "Happy" is doing well now ... that is AWESOME news!
Olesia, was owned by Izzy, a 35lb Spanish Water Dog (SWD), Diagnosed at 1.5 years old - TLI results 1.. Izzy passed away on February 13, 2020 at 15 years old. She lived with EPI for 13+1/2 years. It was because of Izzy that Epi4Dogs was started... she was the inspiration. May her legacy of helping others with EPI continue for as long as needed.........
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